Recent content by helper

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    question about communication

    thats exactly why my mother in law didn't care for her computer to communicate..she was always behind in the conversation. We were going to set up the ball cap/laser pointer system for her because she could barely move the marker on the white board but she ended up like this in the last week of...
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    Frogs

    Mike, i LOVE what your wife did for you! The sound of singing frogs is so comforting...can you get near the pond to see them too? Jodie
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    Can't use bipap?

    My mother in law was told that if she used it too early she would become dependant on it...i didn't understand why they would tell her this.. Al and others who are taking/took an anti anxiety medication before using the bipap...do you still need to take a drug or do you get comfortable with the...
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    Is it Respiratory Failure?

    When it came to anything new for my mother in law I would research on the internet and print off anything that i would find useful and bring it to her...she was totally against a peg even though she couldn't eat and was down to 90lbs. We let all the information soak in and then asked her how she...
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    Ventilator and being moble - need walker advice

    When my mother in law first got her feeding tube she was always stuck to a pole and had to stay in one place while eating...when she regained her strength she had 'things to do' and didn't enjoy being tied down so we got her a portable pump and she would put it in the basket in front of her...
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    recliner lift chair as opposed to hospital bed

    I totally understand where you're coming from...my mother in law 'lived' in her reclining wheel chair and when she had to go into the nursing home she refused to use the bed because she couldn't get comfortable and panicked there...we went out and purchased her a lift recliner and got them to...
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    Question Bulbar?

    Hi Al, so far non on either side has had any other cases...my uncle is my mothers brother so on my side and then my mother in law...and the odd thing was they were both diagnosed the same month..my uncle in his 60's and my mother in law was in her 70's (but a very, very young 70!) by the way i...
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    Question Bulbar?

    can either one be familial? I haven't come across this yet (or maybe I have but it didn't sink in :) ) My mil had bulbar and my uncle has limb Jodie
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    Upcoming Walks

    I was waiting to get the info on the walks...plan on doing it this summer for my mother in law I just got the newsletter in the mail yesterday and I'm reading it and who to my surprise do I see....Al! Great pic Al and they are right about you being here for anyone and everyone. Keep up the good...
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    My Dad...

    JMH my condolances on the loss of your father...we lost my mother in law last nov/06 and i still don't believe it sometimes..I find myself picking up the phone to tell her something (even though its been a year since she lost her speech and quit using the phone). I think I was in the numb stage...
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    Feeding tube - Any advice?

    feeding tube was a great idea for my mother in law who could no longer swallow (bulbar onset) when she went in the hospital for the feeding tube she still hadn't been diagnosed with als..she had lost a tremendous amount of weight at this point. She was drinking ensure but that wasn't enough to...
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    Concerns about breathing....

    My mil who passed away this past november had a DNR and refused to use the bipap machine...she did have a feeding tube (which in her original living will said she didn't want..) in November05 and this helped her gain back the the weight that she had lost. With the bipap she tried it but could...
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    Grampal 2/ no 3 coming

    Congratulations Al on your new beautiful granddaughter...Samantha is just adorable too! Ahhhh, new baby smell! p.s. I noticed all the firefighter items in the pictures...my husbands a firefighter too so theres plenty of that around our house :-D Jodie
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    Thank you

    Chirstmas is a tough time for alot of people...it will be a month since my mother in law passed on the 23rd and my husband and his sister are coming out of the 'numb' stage. They lost their father back in '81 so they feel 'alone' I would like to thank whoever it was that put the link to the als...
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    Attitude

    I really wish my mother in law had come here herself instead of my sister and law and I..you all would have really lifted her spirits. I did tell her a few stories that cracked a pretty big smile (and it got hard to get her to do that some days) like the drool on the cake after blowing out...
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