Recent content by help1127

Good Afternoon, Let me start off by saying that I am sorry if these questions become redundant. I know I'm on a ALS forum and I'm relying on PALS to give me advice. With that said I like to give a brief description of my symptoms since they started. 2011- started with muscle twitching in my...

As some you may know I have been in undiagnosed limbo for quite some time which is good as my neurologist that has been following me for over 4 years doesn't believe I have ALS. As for my symptoms it appears that I have something going on and my Neuro admits to it but does not know what it could...

Hello all, I need opinions on some troublesome clinical findings plus emg results. As many of you know I have been seeing and following up with Neuromuscular specialists here in Florida for a few years now. While I still don't have any firm diagnosis I do have an abnormal clinical exam plus...

Hi I was reading your post regarding Neuromuscular doctors in Orlando. If I were you I would go and see Dr Juan Ros Escalante. He does his own emg's and is very knowledgeable. He is l9cated in Lake Mary. I seen been to both UF and USF and find UF to be better. Just an FYI, most local...

I need support and I dont know who else to turn too. I realize we all have our path we need to walk alone and I know you all have been diagnosed with ALS but I really dont know who else to turn to in this time as no one understands as they only see me as a person who is not dying at the moment...

Hi Karen, I need some advice. So my Neurologist said I definitely dont have ALS and says that my upper neurological symptoms are very mild, brisk reflexes, Hoffman, tightness in legs. Plus my emg showed chronic isolated reinervation in both calves. I'm very fatigued after a day at work, have a...

Thanks for replying I also did read that high levels of lactic acid are found in PALS do too the amount of strain one puts on the muscles. I had emg's done in the past and they found chronic reinervation. But I'm scheduled for another emg on June 6th.

Does anyone here know if there's a connection with high lactic acid and MND? My doctor is doing another EMG and at that point selecting a muscle to biopsy. I know there are a lot of different diseases associated to high levels of lactic acid and strenuous exercise can cause it as well. I haven't...

I agree Thanks shiftkicker..

Thanks for your response shiftkicker. You are right about not being able to get a diagnosis. As for my clinical they have not been normal except for 2 of them and that's really weird. One of my emg's was abnormal showing Isolated Chronic Reinervation in both tibial muscles. He said it was a...

Hello everyone, Just a quick update. Still no diagnosis or name for what is going on with me. Does anyone know if Baclofen suppresses the reflexes. My reflexes are always changing sometimes hyperreflexive and other times normal. I'm a mystery what can I say. All I know is that the twitching has...

Thank you Laurie i had an appointment with him today but had to reschedule as Im getting another insurance plan.

Thanks for your responses it means alot.

I asked him that and he said that he has gone thru all of the different potentials. I wouldn't pay no mind to it if I had a clean clinical and EMG but that's not the case. Plus my left leg is bothering me more and more each day and now my right leg. I don't know exactly what I have but it will...

I truly hear what you are saying regarding people not having anything else to add. I do feel that my symtoms are getting worse. For one my left leg feels dead but I can still use it. It's not numb but feels numb. Plus I get alot of pain in my calf after walking a little. My left hand feels the...