Recent content by Harlin

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    My FVC is -20 or less I use a full face mask about half of the time. I still can walk and most...

    My FVC is -20 or less I use a full face mask about half of the time. I still can walk and most of arms. I am considering getting a trach but the Als center says I will in hospital for at least month and come out loosing 50% of health. Now I don't what to do I have balbar Als. Help!
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    Diaphram very weak

    I just got news about my diaphram, it is very week.so I am using a bipap machine now at night. Today I got sensation like my air ways where blocked. That is when not on bipap. Any ideas what's going on. I have a feeding tube but never needed to use it. Thank you Harlin
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    Bipap and dry mouth

    I am having trouble using bipap mask because I get a very dry mouth. I have trouble swallowing, so choked on water when mouth is that dry.Oh and I can still eat and drink just have to carefully. I want to use bipap but I don't know what to due. Thank you Harlin
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    ALS no help

    I just got social security disabilty and medicare and keeping Aetna as backup. Those a great Ideas I never thought of that! Thank you so much.
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    ALS no help

    I've been living with ALS about a year, but got diagnosed in August 2012. So far, I only lost most of my speech and weak turning things. The only person that helps is my friend. I am worried that she does realize what's coming. My Dad had ALS so I know what's coming. Is there aware to get help...
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