Recent content by happygardener

I understand..ifi have 3 sons in there 20s who dont help either..they have all moved out but could come home and help..its been just me all along..i run a private daycare in my home and if i want to keep my house i have no choice but to work as my pals has no long term disability..i try not to...

Things are not good here..we have support from pallite are now,,th docs think Ron may have a few weeks left,,no ore than 3 months..he looks like he has pnemonia now but it could just be viral..waiting and praying for him to be at peace and feel better..this suffering is unbelievable

Hope your doing well!

Hoping all is well with you and your family!!!!Take care!

hi Barbie and all new friends i have found I am soo busy with my pals as well as his monitoring my computer use( he feels i should be tending to him and not on the internet0i beleive it is yet another controll issue) not on o much but i need to be!

This is all so bad!Hugs!just when i think i have it soo bad i hear of someone else who has so many issues..we are all in this together!

I am convinced my husbands thought processing has been affected,the neuroligist have blown it off but he is not the same person at all..without getting into a page long description all i ca say is he is a very,angry resentful man who at one time thought his family was everything,now he doent...

Lots of changes here..just looking at your pic..You have amazing spirit!I wish my hubby had tried to live life to the fullest..although he feels denial helps him cope,i like your approach better,Hope your enjoying your summer and feeling well!

Graham,I think that carrying out your pals wishes is one of the best things you can do for your pals and for yourself..Youwill have no regrets.I am the sole caregiver for my husband he sounds a bit like your Michel..strong and pround.my husband will not take meds,use a wheel chair or hoyer and...

I could write a book about our nighttime experiences but one thing I was wondering...did you husband get hot at night.Ron has me turning the heat off and opening windows,also he is very sensitive to smells and says it's hard to breath if there is a strong smell.I look at his chest and there is...

not sure if you still check in these days but my husband sounds like your late husband..no peg,vent or meds..in a recliner,paralysed,cant speak and is waiting to die..I have questions about breathing issues thx debbie

not sure but a fellow cals said that hospice said her mom had it..i guess its caused by co2 build up,chest is bowed and hard..i was looking ito it because my husband chest has changed but all i have found is pictures of drawers with ows and something called pidgeon chest..im still searching

anyone have links to information about this..

A while back I posted a link to a contest that would win us a home reno making the home functional as my husbans als progresses..TODAY is the last day to vote..please vote and leave a commnet how this would help.,life with als anything that would inform the judges..Thanks all...

Thanks everyone...i enterd last year and made it to the finals ..they base their decision upon need and there are other deserving peple as well..but you cant win unless you try....I cant get him upstairs anymore and thats where our only bathroom is so it would be great for both of us...bye...