Just want to offer some lunasin supplements for free in India. My mother passed yesterday suddenly after fighting with disease for 11 months.
I have some bottles for lunasin, reliv now and Provantage. Sorry don't have the complete count. I am based in India and I know how difficult is to...
Thanks Nikki. Responses:
Yes to the Riluzole taking at least an hour before meals.
Vitamin D level is fine. It shot up to be at toxic level once, so she is off that now.
She takes a spoon of L serine in water, so yea I am sorry she takes around 10 grams.
Lunasin is a tricky one for us as...
I know this has been discussed many times before but finally my mother is on a regime and I want to know your valuable thoughts and get inputs.
So here's the routine:
1. Riluzole before breakfast
2. L-serine (around 15mg) somewhere in afternoon before her physiotherapist comes.
3. Acetyl...
Nikki,
You mentioned TUDCA, I did read about the study which seemed to be effective. I am going to try to get that shipped to India.
I want to understand if all these supplements/medicines make sense together. Any interactions?
1. Acetyl L-Carnitine
2. B12 - mecabol
3. Vit E - Evion
4...
Very very helpful Guys. Thanks very much. Here are answers to some questions Nikki:
1. Yes she has been diagnosed by doctors. We do have great doctors, she is seeing one of the best neurologists. The problem is the lack of informed support staff to help with the quality life.
2. Supplements...
I do agree with you Mike. Thank you. I am just weighing all my options (for what it's worth). Also I am trying to get responses for all the points I mentioned.
Hi,
Today I have started to believe that my mother might have ALS (still in a bit of denial). She has lost the ability to walk as he other leg is also affected now including the ability to easily turn sides. So far, she has problems in lower limbs only (somehow I am just hoping it will stay...
Yes the diagnose they have given is Anterior horn cell disease (I know!). My doctor said we need to wait to see if IVIG works. I just wanted someone to look at the symptoms and tell me if its atypical? The progression rate according to the doctors is too fast for ALS. Just wanted to hear more...
First of all, I can;t thank enough the people on this forum.
Chronological series of events:
June 20th (my indian wedding): My mother is exhausted and tired a bit. She has arthritis and thinks knees are not holding up well.
June 22nd: All of us take a long flight to US (16 hours straight)...
bulbar
depressed
emg
fasciculations
foot
foot drop
hours
ivig
life
mobility
mri
support
surgery
swelling
test
treatment
trial
trip
weakness
wheelchair
wrong