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  • Hi Hal,

    Did I get it right that you are have been diagnosed 1 year ago, having had symptoms for more than 3 years, and have not (yet) experienced any muscle paralysis? I would be very happy to exchange thoughts and experiences with you as my situation appears very similar.
    H
    Hal
    Hi Meyermihi,

    Yes, although very subtle and mostly only in cold weather, I first experienced issues with my fingers in late 2019. And while I've lost a great deal of muscle mass in my arms and shoulders over the last year, I still have good range of motion and per my PT person, my leg and core strength are still in the 95% for a person my age.
    Hi Hal..thanks for your message. Sounds very similar to my dad and that is something because in the last 3 years of my readings and going into forums or groups to find people with similar i dont find many. How are you doing? My dad turned 72 this past february and has a dx of flail arm. Started in left, progressed to right.
    M
    Mon
    Thats just great that you are hiking. I think its such good therapy keeping active for mind and body. I appreciate your reply. Exact same as my dad, all arm, hands, shoulders. Very similar. Im a daughter. I try to see what others in similar curcumstances arw
    M
    Mon
    Circumstances are doing or trying.
    M
    Mon
    Enjoy your road trip & hiking.
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