Recent content by GuyFromTheUK

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    Worried about MND plus Respiratory/Bulbar onset

    Hi, I did go and see a Neurologist last October due to headaches which were diagnosed as Migraines after a clear Brain MRI, I also saw him because of leg twitches but he wasn't too worried about them. I am still under the care of my Rheumatologist who i have been seeing since January amd he is...
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    Worried about MND plus Respiratory/Bulbar onset

    I've been diagnosed with COPD this week after waiting a few months and at 32 that was a big shock, I hope so much I don't have ALS too! I only have twitching in the left leg, nowhere else.
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    Worried about MND plus Respiratory/Bulbar onset

    Hi Nikki, thank you very much for your reply, that's helpful, what bout the reduced ankle jerk on the left side? The positive neurl slump and he straight leg raise? I've had twitching in my left leg for at least 3-6 months now also.
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    Worried about MND plus Respiratory/Bulbar onset

    I know that Radicularpathy can be caused by other neurological conditions but given the above information and that I've had twitching in my lrft leg in the knee, thigh and ankle for quite a few months now surely that points to ALS more? So worried and anxious now.
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    Worried about MND plus Respiratory/Bulbar onset

    **UPDATE** Just got a copy of my Rheumatologist report regarding the pain in my left leg which states:- "Examining him today, he did have a positive neural slump and straight leg raise on the left the joints themselves were normal. There is no obvious sensory loss but the ankle jerk was...
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    Worried about MND plus Respiratory/Bulbar onset

    Banned? Why? Having constant rib and back pain and shortness of breath certainly sounds like Respiratory ALS to me.
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    Worried about MND plus Respiratory/Bulbar onset

    I understand why you're annoyed but don't you think that the breathing issues, constant leg pain and twitches in the left leg and other issues are a big issue?
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    Worried about MND plus Respiratory/Bulbar onset

    Hi, I wasn't having breathing issues back then, also its not normal to have twitching in the left leg everyday is it?
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    Worried about MND plus Respiratory/Bulbar onset

    Hi all, My last thread was closed for some reason. Anyway as you know I've had a bad leg since around October last year it started in the thigh with pain now I get pain in all of my left leg and twitching every day in the left knee, thigh and calf. My Rheumatologist has ordered a spinal MRI...
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    New here advice needed please.

    Oh and Atsugi, when you said ALS/MND doesn't start in the lungs, I meant the form of ALS/MND that affects your breathing/diaphragm first, I do feel short of breath a lot but I have had Asthma for 30 years and as above my Lung Age is poor and FEV1 is only 65% as I explained above. Is SP02 levels...
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    New here advice needed please.

    Thank you for all your replies, much appreciated. Atsugi, when you answered my question about hoarseness you didn't say anything, please could you confirm what you meant by putting -- ? I need to add a couple of things that I forgot in my post above. Firstly, my left hand does feel weak and...
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    New here advice needed please.

    Hi all, I need to follow this up, I've got quite a lot going on and I want some opinions. To add to the above:- As you already know, my left thigh has been hurting since October and i do get twitching there and in the calfs and the left knee and calf and ankle as well as other places, but I...
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    New here advice needed please.

    Hi all, I've come back as I want some more advice. As you know I yawn and sigh a lot every day but i've had this for a few years. Is pain a symptom of MND? I have been having pain in my left thigh, calf and ankle for around 6-7 months now, also I get lots of twitching, I don't always feel it...
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    New here advice needed please.

    32 year old male from the UK here. Concerned about several issues such as: *Shallow Breathing/Constant Yawning and Gasping *Sometimes having trouble getting words out *Pain in the left leg mainly in thigh/knee *Twitching mostly in the left leg but also in other areas I've had constant and...
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