Recent content by guwainengle

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    How lobg have most members twitched on here

    The constant twitching makes all of us go crazy-- don't feel bad-- however-- I am able to still do curls and benchpress a fair amount of weight-- but get shakey when I do do them-- I have been twitching now for @ 9 months. Maybe the weakness is from not continuing to work out-- I think that is...
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    internal tremors

    I am experiencing the same thing and it is constant- I first noticed it in my legs and now it is in the legs and shoulders. Sometimes I actually see my arms shaking when I rest them on computer desk and use my mouse. I am going to get another EMG on friday-- I wonder if this will show up? Or...
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    Twitching and the long road to ALS diagnosis.

    You actually make me feel good about your post- being known as the mad twitcher of PA is no plesant nick name-- but if it is only BFS -- I will be very happy. Unfortunately I know there is something else wrong and I just hope I am not one of the rare presenting cases. G
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    Laryngospasm

    Hi ZenArcher- I get occasional left side spasms/fasciculations that come and go at times in my neck-- They last a few seconds but nothing like you are depicting.. You may wanna call Dr S and see what he can do to relieve this-- It could be not just scary but serious if breathing is affected. G
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    Twitching question?

    Blizna-- I got the same type of answers that you have stated also-- There are so mony different variations to what on reads I am very sceptical of any doctors conclusions and suggestions. I can say my twitching continues and am scheduled for another EMG this friday on the right side of my body...
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    What happened to my access?

    Mine is out also-- G
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    Stem Cells

    I have recently heard of stem cell therpy utilizing ones own stem cells for clinical trial purposes. This was for MS research but nothing on this matter for ALS. You may want to contact the ALSA to see if this is being conducted. Be very sceptical of any other resource because fraud is rampid...
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    Just returned from EMG

    Blizna- Have you been diagnosed with anything as of yet? What are they actually saying the cause of the twitching is? G
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    Just returned from EMG

    It probably was not a good idea to take anything before the EMG that could reduce the twitching or fasciculations-- But with that said-- I stil have not found anything to stop them and I would feel that it looks pretty good that they did not find any abnormalities. G
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    In Limbo

    Sorry-- thought there was only 1 Rochester. G
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    In Limbo

    Hi Screwedagain-- I was thinking of you when I read the US News and World Report magazine for the Best rated Hospitals-- Believe it or not-- The Mayo in Rochester MY is rated #1 in Neurology.. I did not even know Mayo have a facility there. You may want to check this one out-- I am not good...
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    Did anyone have Fasciculations before Atrophy?

    Megs-- I wish I looked that good at 43. Sorry to hear about the double-wammy. To answer your question on FTD. I have seen on other posts that there is a corolation between these two diseases. It seems to not be coincidental. May I ask about the type of twitching? Was it fasciculations of the...
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    scared and anxious

    Cornelia- You are at the right place for support-I hope all goes well. Remember to start documenting allthe progression of your symptoms. Sometimes anxiety can cause these symptoms. ALS is a diagnosis by exclusion and can take quite a while as many on this site will explain. Keep the faith and...
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    Up All Night

    My cramps really come and go-- but the unsteadiness is starting to set in.. Interesting fact on the marijuana-- I don't think I can go there yet. I probably would gain 50 lbs-- and be up all night eating. Plus knowing the company I work for -- they would never hesitate in checking- In PA we have...
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    Did anyone have Fasciculations before Atrophy?

    Rob- I can say I had at least 3 months of fasciculations with a normal EMG coming back after a very thorough exam. It has been a few months after that test and my cramping and twitching has gotton worse and am awaiting another in3 weeks to have a follow-up EMG. I have no atrophy that my wife...
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