Recent content by Gunnerhappy

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    Rilutek cost

    :-(The cost - benefit ratio just doesn't make sense to me.
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    Experiences with Bulbar ALS w/No PEG

    I have Bulbar onset ALS which was diagnosed about 9 months ago. I have zero speech and choking on anything eaten faster than at a snail's pace. Choking is continuingly getting worse so I an scheduled for a stomach tube in about a week. I can always have it pulled but I lost 27 pounds in under 2...
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    Rilutek cost

    I have been on Rilutek for about 6 months and see no benefit. Saying a med extends someone's life a few months makes no sense to me. How would a study ever prove that in the first place ?!?
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