Guillaume

Everyone's journey is different. You might find a more supportive community on Instagram. There are many young people who have been diagnosed with ALS that are willing to answer questions or openly discuss their journey.
I hope to hear more from you. Please keep updating.

Hello. I just wanted to say I applaud you reaching out on this platform to talk about your concerning symptoms even though many members seem to not have compassion and are dismissive. I'm not sure why that is. You have From what I have researched, it can take a year or even 2 to get an ALS diagnosis for some, after being dismissed by doctors for all that time.

Bonjour Guillaume, j'ai lu attentivement ton dernier post, je suis également symptomatique mais c'est plus de la perception que de la faiblesse clinique(depuis de nombreuses années)
As-tu vu un neurologue spécialiste en maladies neuromusculaires ou un spécialiste d'un centre référent sla ?
Beaucoup de courage à toi

Salut je suis français j'ai 28 ans j'ai vu ton post par rapport à ta crainte d'avoir la SLA, si tu veux on peut parler en privé

How have you been doing? How are the symptoms? i have all the same symptoms for almost 6 months now. I have had 2 normal emgs but im getting worse. Twitches all over, cramps all over, right hand tremor and atrophy

Hi G how are you holding up. I’m in a similar situation and having a pretty rough time.