Recent content by grounded

when i spent a few days in the hospital i asked for a condom cath. they said they use something better - search for primofit. it suctions urine. worked great for me.

I had a Golden Lite rider loaned from ALS assoc. Easily breaks down with heaviest part 35 lbs. My wife was able to work with it. worked well until I became uncomfortable transferring into the car.

Airhawk is a powered option. Folds small. Weighs 41 lbs.

cutlery for better grip - i have one of these but since i cant rotate it, it just drags the spoon flat on the plate. Something that allows variable roation would be a big improvement. Also, headrests are adustable for someone standing next to the wheelchair and using an allen wrench. The...

I was diagnosed at Univ of Pittsburgh Medical Center. They do clinic and ALS research. <link to ALSA removed because of donation button; map of US centers is here -- mod>

I have a Brondell S1000 that looks very similar to the Alpha Jx. Features look identical, except for the Alpha light. Amazon shows the Brondell costing $200 more, so the Alpha looks like a better value. Mine doesn't clean 100%. I'm still able to wipe, which I do. In the end, I'm cleaner...

My first symptom was falling when going up stairs. The beginning of foot drop. I didn't feel weak or even know I had weakness. A few months later a neuro exam noted weakness in a lot of places. This surprised me because I didn't notice any weakness myself. In my experience, early weakness...

If you can stand on your heals, no way, no how do you have foot drop.

Can you stand on your heels?

There's a few on Ebay now.

I take 5 mg THC (indica) capsule an hour before bedtime. I'd think you could mix the capsule powder into a liquid for a feeding tube. I've been taking this for 3 years and it does help me sleep.

-When I was first diagnosed the neuro at major ALS center said there's nothing I could eat that could help or hurt. The dietitian I see at clinic said to eat everything and anything - just so I kept weight on. That's what I've been doing since diagnosis in 2011. For the first 7 years, the...

Nikki That was in my post response to the original poster.