Recent content by grgizi121

I am sorry if this post seems rather blunt but I have no idea who to ask a question that just wont go away, its been in my head for months! What specifically do people with MND normally die from. Is it normally respiratory failure? On a percentage basis does this account for 90%, 50% .... if so...

Hi, My husband was diagnosed in May 13 and to date hasnt shown any signs of breathing problems, but his speech has deteriorated. His last overnight assessment was in June and he had a letter to confirm it was 'normal' I have noticed his breathing has been very noisy the last few weeks and his...

Thank you for the replies I call it gagging not sure if it's the wrong term but it's as if he has just stuck his fingers down the back of his throat. Sorry, best way I can think to describe it! Even strong smells seem to be setting him off with it at the moment He has also been struggling to...

Hello I am hoping for some help/advice please. To cut a very long story short my husband was diagnosed May13 with limb onset. He has been doing really well apart from his reaction to riluzole which we also assumed was the cause of his gagging and nausea because he had an elevated liver function...

Hello After some advice please. My husband is struggling with what he describes as 'a tight chest' He is prone to asthma if he has a chesty cough but doesn't have one at the moment. Could this be the start of respiratory issues? Thank you

Thanks for the responses. My instinct was exactly the same, why waste time with a knee replacement now. However, my husband is in constant pain and is woken in the night by it. His only relief is moving his knee to ease the discomfort, and I know he is terrified about getting to the stage where...

Since my husbands diagnosis in May we have been busily enjoying things together as a family and pretty much trying to ignore it. Until yesterday! A consultant appointment about my husbands need for a knee replacement, and my little boys first induction session at school has felt like someone has...

Although I didn't actually do it, it appeared that you could pay to download and host your own 'private' screening in your own home. Which was what I was considering doing. But I think it may be a little too soon. I totally agree about Carlos learning from others. People comment critically...

OK, now this might sound like a stupid question but here I go.... When my husband was diagnosed they stated he had nerve damage in his arms and calves. But no sign of nerve damage in his face, throat or thighs. However he is only showing visible symptoms in one arm Does this mean that his...

Has anyone out there watched this documentary yet? I am undecided whether to watch it or not! I don't know whether it would be good to prepare myself for the future and show how others have dealt with these things, or just terrify me thinking in detail about what we have to come x

Hi Olly, We had a call saying they could squeeze his EMG in sooner (think the consultants secretary had pulled a few strings!) so we saw the second neurologist a whole week earlier than expected. MND was confirmed Thursday evening and we went away as planned on the Friday! So it was all a bit...

Thank you Barbie, thats really kind I still dont think its really sunk in yet. I have been busy planning all of the things I know my husband has always wanted to do (but has delayed for various reasons). This has stopped me thinking too much about the future and made me concentrate more on...

Second opinion Thursday evening confirmed that my husband 41 has MND It doesn't seem real. It's all happened so quickly I don't understand. Everything I have read said its takes ages to get diagnosed. I guess he first saw GP 10 months ago, and was dismissed as clumsy. But its only been about a...

Yes first neuro visit! However, he had a couple of consultations with an orthopaedic surgeon first as he was referred by GP with suspected carpel tunnel, then it moved onto suspected trapped ulnar nerve, then suspected brachial plexopathy. Between which he had an EMG, and MRI or shoulder &...

Hi, thanks for replying I guess I wasn't clear why I was asking. My husband is currently undergoing tests and awaiting a second opinion as his neurologist said he suspected MND on first visit! His muscle twitching is constant in the one arm that has some loss of dexterity, muscle...