Another update for other wanderers without diagnosis:
Detailed immunoblot showed 3 antigens specific to auto-immune myositis of yet unsure kind.
Neuros are baffled, as I do not have elevated CK, nor CRP, normal sedimentation, I have two times clean EMG, and no clinical weakness as well as...
An update from me:
Second clean EMG, not even fascis. After a second and a very thorough test, I am free of this diagnosis completely.
I will contine my search as I am not actually getting better, but if I eventually get to continue my life, I've promised to God I will join the research forces...
Laurie,
Thank you for your wise words and for checking from experience.
I have noticed some threads with similar issues, but not much of them reached a full "what was it" conclusion. I will get back after the rest of the tests with an update for other worried people.
Until then, I will go...
Hello!
First of all, I am really grateful for all the help of you, PALS and CALS, provide to us that are still lost in our medical conditions, and I respect you immensely for that.
In August, my first symptomes occured. After a spasm that woke me up, my middle finger on my right foot started...