Recent content by Gretchen

  1. Gretchen

    The love of my life is now whole again...

    So sad for you and yours. I have yet to go through this with my wonderful sister. We are a family. My sympathies and love to you. We have never met but we are traveling on the same path.
  2. Gretchen

    Computer devices.

    I want to find a keyboard that is compatible with an Apple for someone who is losing the ability to type. Something she can still use with a non-dominant hand that has larger figures. She is also losing her ability to speak. We live far apart and can only get together on the phone which is...
  3. Gretchen

    Hi Marta. I went back to this site after a long absence. Alice and I had a conversation today...

    Hi Marta. I went back to this site after a long absence. Alice and I had a conversation today about a non-profit organization called 'Dying With Dignity'. She had sent me a link - you should watch it - Sept 8th, White Coat, Black Art on CBC. It's a serious of interviews with a man who had...
  4. Gretchen

    Hi OMGMP, I returned to this site last night. I haven't been on for about a month now and I...

    Hi OMGMP, I returned to this site last night. I haven't been on for about a month now and I discovered that Allen and Al have died and Ken is not available. I'm also very worried about you. I saw the photo on your Facebook page - I didn't realize you were in a wheelchair. Marta, tell me...
  5. Gretchen

    Al did something very special for me. When I realized, back in November, 2011, that my sister...

    Al did something very special for me. When I realized, back in November, 2011, that my sister had ALS, I joined this site. Met many special people. My sister had her second opinion in January, 2012 and I convinced her to join this site. I was afraid that she would see my earlier posts...
  6. Gretchen

    Oh no!!!! I just realized he's gone. He was so gruff and yet so helpful. He reached out to my...

    Oh no!!!! I just realized he's gone. He was so gruff and yet so helpful. He reached out to my sister who was diagnosed just last November. This illness is just so cruel and horrible!! While he could be a bit frightening at times, he knew when someone was really suffering and then he was...
  7. Gretchen

    Hello Ken, I am thinking about you. I need you to know how helpful and comforting you were to...

    Hello Ken, I am thinking about you. I need you to know how helpful and comforting you were to me when my sister was diagnosed. You were one of members who really stuck out in my mind. You are an inspiration to me and my family. I wish I could have met you.... I don't know what our...
  8. Gretchen

    Hi Ken!!! How are you doing? Hope your spirits are good..... Alice is having a difficult time...

    Hi Ken!!! How are you doing? Hope your spirits are good..... Alice is having a difficult time - we noticed this week that her speech is becoming slurred. And she says her right leg feels 'funny'. I just hate what is happening - it is just SOOOOOO sad!!! Ugh!!! How DO YOU do it?????
  9. Gretchen

    Comment by 'Gretchen' in media '[No title]'

    Beautiful - have you done a painting of a robin? Or of a hummingbird. In snow?????? My sister who has ALS worries so much about her robins and her hummingbirds when it snows.
  10. Gretchen

    Dear Al, thank you again for deleting my posts several months ago re my sister. It was a good...

    Dear Al, thank you again for deleting my posts several months ago re my sister. It was a good thing because now that her diagnosis has been confirmed (second opinion by the B.C. ALS Clinic) she does want to be on this site. I got to know several people - Marta, Ken, Aly and others and they...
  11. Gretchen

    Ken, tell me.... why can't they just bundle you up and take you to the beach? Are you unable to...

    Ken, tell me.... why can't they just bundle you up and take you to the beach? Are you unable to leave the house now? We've just recently become friends and I don't know where you are in this God-awful illness. If there is anything I can help you with - stories, humor, support..... just let me...
  12. Gretchen

    Hi Helen, my God this is excruciatingly horrific. I don't know what words to use to describe...

    Hi Helen, my God this is excruciatingly horrific. I don't know what words to use to describe what is going on in our lives right now. I know, I know (intellectually) I know that things will change and this will "become the new normal" but this is a normal we want to deny and pretend isn't...
  13. Gretchen

    Ken, would you tell me just where you are with this whole ALS thing? You say you can't walk...

    Ken, would you tell me just where you are with this whole ALS thing? You say you can't walk well anymore and you're getting botox for the drooling. How long have you had ALS? How do you spend your days? I see my sister wrote you back - I know she needs so much help right now (as do we all)...
  14. Gretchen

    Hi OMMP, how can Alice write you completely privately? How can I? I think we both need to...

    Hi OMMP, how can Alice write you completely privately? How can I? I think we both need to learn how to write people without ANY ONE else being able to read the messages. Is that possible? I want Alice to be able to feel confident that anything she writes to anyone she befriends on this site...
  15. Gretchen

    You know,my favorite color used to be blue. Now it is green. Aly, thank you for reaching out...

    You know,my favorite color used to be blue. Now it is green. Aly, thank you for reaching out to my sister. How are you doing? I need you to know that even though my family is in the midst of this new horror, I do want to be supportive of you. I'm a good listener, Aly. Talk to me.....
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