Recent content by GregK

My very best wishes to all of in your journeys! I was censored and my contributions belittled, I have severed ties to this forum . If you wish to receive any of the resources I've generated for the ALS community, please search social media for Greg Kenoyer.

This account can no longer respond to messages. I was censored and my contributions belittled, I have severed ties. If you wish to receive any of the resources I've generated for the ALS community, please search social media for Greg Kenoyer. Best of luck!

ALSinfo https://1drv.ms/b/s!AjirW2QE_A1pgwIDLrkZn62_HrCW

Well, actually, from my experience, you're both prolonging the process and making extra work for yourself. Give it a try and use whichever works best for you. There"s seldom one right way. :-)

as there was no ALS diagnosis either outright or implied, this thread has been moved to DIHALS.

Tillie is spot on. From my ALSinfo document: Burping via G-Tube It took me a year to learn of this trick! But I can’t blame anyone for that oversight; while in respite care for a week, I trained experienced RN’s how to do this. Had I had this knowledge, I'd have avoided my first, 2a.m., panic...

Thank you for the comments to date. Unfortunately it's been pointed out that the attached document violates the forum rules as it contains links to web pages with Donate links. I have removed the offending document and am locking the thread. Again, thank you. 8-)

Essential information for the newly diagnosed! This is my magnum opus. This, along with my other documents and efforts to support the ALS community, is how I justify my continued existence and attempt to make amends for a lifetime of hubris. I have just begun my 7th year post diagnosis and I...

http://www.teamgleason.org/wp-content/uploads/2019/01/Team-Gleason_wheelchair_web.pdf

absolutely. For quite awhile anything with tomato sauce tasted metallic. It passed. I sorta suspected the Gabapentin.

Hell, you can get that from a cup of coffee! :-)

No, but this might be of interest https://f1000research.com/posters/6-2118?fbclid=IwAR21Ij1oTe_C97DfunRE7zB5m7od1GrCHkUk7b2jlBjZP5g58x8nLghItuo

Twitching means absolutely nothing. Nada. Zero. Zilch. The only people who don't twitch are dead people. As to 'feeling weak', I'm 90% paralyzed and have never felt weak. If that's all you have, you've no need to be here. A clean EMG means no ALS. Did a doctor confirm the atrophy or is that...

Previous post here: https://www.alsforums.com/forum/do-i-have-als-als/43088-atrophy-bicep.html Tell you what Lou, since you were previously told it doesn't sound like ALS, let's hold off on any more 'guesswork' until you've received that EMG and the results? BTW, unless you are a doctor...

GW's been trying for years. Reefer Madness stupidity holds them back.