Recent content by Greeneyes

Could you explain what a care kit is. Thsnks

Sending healing blessings to you. So sorry for your loss.

Has any one started on the drug Radacava? My brother will start on this soon and wondered how effective this is. Does this prolong life expectancy. Ant thoughts would be welcomed.

Thank you for your suggestions.

I was not aware that you could blend home foods to put through your peg tube. I will suggest this to him.

I will look into this. Thank you.

I was going to suggest that my brother meet with the nutritionist at his next apt to discuss all the options to get more calories in. He has lost about 60 pounds and we don’t want him to lose any more. We were hoping that he would gain a few pounds.

Any suggestions on how many calories a day a person with ALS should be taken in daily. My brother had his peg tube placed recently and has started on Jevity. He was is still eating but appetite has decreased and chewing is more difficult. I am worried that he is not getting enough calories to...