Recent content by GreenCat

Dear All. Do you happen to know about the "Right to Try" law? ILB is dextran sulphate, It's a patented, low-mol. weight form.of DSS and the clinical dosage is LMW-DS, approx. 20 % sulfate, mean MW 5 kDa [edited for accuracy; the trial you linked to is complete but is now linked to its NIH...

Are you going to write to TikoMed?

Sorry to complain...but, here goes: Pollen! Embraced and romped in it in the before-times, now it generates windpipe-clogging goop that is only pried out on dribs and drabs. Am trapped inside, looking out at the green and breezy world. A mask suffocates. Any suggestions?

Checking in on a Wednesday. Returned from trip to N. Spain for crashing surf and orange blossoms in Cantabria and Goya at the Prado (I look increasingly like his tormented ghouls in the Black Paintings). The trip trounced me. Now nearly summer in Asheville. Sketching the green and leafy view...

Atropine?

Has anyone tried aminophylline to improve SOB?

Thank you, MarineChief! Will do! Snow angels: they feel good and they're up-beat. I saw one woman who recommended lying on the floor and rolling like a rolling pin.

Is anyone doing neck exercises to stretch and possibly strengthen? How's it going?

I'm here!

I said I'd rather starve than get a feeding tube - even the words are horrible, but now we call it a Nutrition Transport Line, which is a little better. Before it, I had been choking to weeping exhaustion and blue lips staggering to the Cough Assist every dinner.

SuziQ, Prop yourself up and tip your head a little forward to keep your saliva from pooling in the back of your mouth.

That's a welcome wish. To you too.

I have had a similar experience with clinics. We drive 3 hours to get to them. We wait in small rooms and the respiration, nutrition and technology people either come in or we are shuffled up and down halls to see them. People lean in from time to time to say, "Are you waiting for the...

Thank you, everybody. Sooner, better than later, liters of luscious water and not dismaying my care-giver. I can give up cooking shows. Thanks again. Very very helpful.

There's pragmatic decision-making: "Have I lost more than 5% of my body weight?" Check! "Am I choking in spectacular fashion nearly every day?" Yes, indeed. If Yes, then it's time. But beyond pragmatic, the words "feeding tube" are revolting and it feels like giving in one hole at a time. But I...