Recent content by Grampal

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    Respiratory failure?

    Hi Michelle. ALS doesn't go to your respiratory system usually. What it does do is weaken the chest and diaphram muscles that control your breathing. This makes it harder to breathe especially when reclined or laying down. Some like myself need a Bipap machine to help them breathe at night. Has...
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    Bunaogao ~ has anyone heard of this?

    We had someone about a year ago here extolling the virtues of it and wanting everyone here to buy it. I don't think the ALS sufferers beat his door down trying to get it but you never know. Maybe it has helped some but who knows if it was that or the fact they quit eating red meat or whatever. I...
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    Trouble with dad

    Hi Jennifer. Sorry to hear you are having problems. Have you contacted your local ALS Society. They sometimes have volunteers that will come and sit with your mom while you get out for a rest. We have home care nurses here that will come into the home to help as well. I'm not sure if your state...
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    live-in caregivers

    Thanks Yolac. I have had a friend use 3 different Filipino Caregivers for my friends mother who has alzheimers. As I mentioned earlier she received the best of care from each of them. I would not hesitate to recommend them after the proper interviews are done and a work agreement is worked out.
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    Baclofen

    I took it for a while for muscle spasms and then found Quinine worked better. I just use the quinine now. Never noticed tiredness but then I always seem tired now anyway.
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    Has anyone else been bounced?

    They aren't being too specific yet. They are saying" there may be more here than meets the eye" Yes the EMG and nerve conduction tests were done and I'm not sure which one showed the anomoly. Still waiting to hear back from tthe Hosp. to get the lumbar again this time under X-ray. That way they...
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    Has anyone else been bounced?

    The lumbar puncture is used check the pressure and a few components of the fluid to see if any are off. If the fluid is clear it is good, sort of. If it is cloudy then you may have something other than ALS. It is basically another test to rule out other things that could be neurological...
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    stem cell

    Hi again Barb. Go to this web page for the Castle Rock Colorado Firefighters and then click on Jeff and Cyrilla's page. It tells his story from the start until recently. One of the more honest and upfront reports on stemcell transplants. http://www.castlerockfirefighters.org/
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    stem cell

    Hi Barb. First of all the doctors are not going to tell you they are killing people. That may be a bit dramatic but have you read about these people in any of the good medical journals? I don't think so. There have been people in China doing stem cell transplants for $30 K with limited...
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    Has anyone else been bounced?

    Hi guys. I tried to get on line last night and today and it would not take my password or username. Has this happened to anyone else? I'll try to get my old identity back on Monday. Just because I'm not using my home computer shouldn't make a difference and to make matters worse I have had a...
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