Recent content by GracyL

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    Fearful and feeling ill-advice appreciated

    I thank everyone for the kind replies and advice. I feel my symptoms are worsening and getting into my neuro is about 30 days out. Years ago I visited the Cleveland Clinic and I am considering getting a virtual second opinion through their neuromuscular department. I was wondering if anyone has...
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    Fearful and feeling ill-advice appreciated

    Thank you all for the kind replies. I wanted to update. I saw my neurologist who is my prior doctor and a very well regarded neuro muscular specialist. She would not do an emg at all. She had me walk and stand and sit. She dismissed me in 5 min and when I asked her about what could be causing...
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    Fearful and feeling ill-advice appreciated

    Hi there and thank you so much for your reply. I am seeing the same Neuro I saw back 2 years ago. She is excellent and a very well regarded specialist in ALS here in Texas. The tremors they say are genetic. I’ve always had slight tremor in hands. But in the past 2 weeks when I am doing anything...
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    Fearful and feeling ill-advice appreciated

    Hello everyone and thank you so very much for your support and kindness in reading this. I have read all the proper links ahead of posting. I came to this forum about 2 years also with left leg weakness and twitching which, after emgs, was told I did not have ALS. Never obtained real dx for...
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    Very scared and appreciate advice

    Thank you so much and I agree and appreciate this. Can you recommend excellent academic centers in Texas? That is where I live actually. Thank you so very much. Covid has done very scary things for sure.
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    Very scared and appreciate advice

    I sincerely think all of you for your comments and advice and direction. To be honest reading over the diverse opinions is quite concerning and also reassuring at the same time. I honestly don’t know what is wrong. I am hyper reflexive in left arm and leg. Left leg and foot becoming weaker it...
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    Very scared and appreciate advice

    Thank you. I certainly appreciate the sound advice. Sometimes when a side of your body isn’t working you think stroke or emergency. I have gone back to my Neuro this week and she seems to think I am intact. But we all know our own bodies best and something is wrong. I am trying to brave the next...
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    Very scared and appreciate advice

    Thank you both very much. I have tried to use rational thought here but it seems daily my symptoms are more pronounced. This week my left side continues to feel spasms in shoulder, and my arm and left pinky are becoming stuck and hard to type. My arm feels weak. I have chalked this up to the...
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    Very scared and appreciate advice

    Hello and thank you for reading this. I am quite terrified and would greatly respect and appreciate any advice you all can give. I am a 61 year old female and I have been experiencing very frightening symptoms for about 4-5 weeks. Started with muscle stiffness in back, twitching all over...
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