Recent content by Gracie

  1. G

    Cannabis

    Hello, My state just legalized Medical Cannibus. I understand that it helps with the legs spasms, drooling, nose dripping ect,. Does anyone know if it truly helps and what is the procedure that you must go through with the neuro. I'm sure this topic has been beaten to death on the forum but I...
  2. G

    finger tips hurt and tingle

    My husband has had PLS since 2007 and I have never had him complain from finger numbing, however, I have numbness in right thumb, index finger and slightly in middle finger. Had mri of neck, x-ray of shoulder and chest. Just had EMG and nerve study proved carpal tunnel. I had EMG on left hand...
  3. G

    Questions regarding Brain Atrophy?

    My husband was diagnosed with PLS 5yrs. ago. He had all the tests that they put one through and he had a brain MRI at that time. His symptoms started in his right leg with his knee kicking back when he walked. Since then he has weakness in both legs, clonus in both feet, weakness in both his...
  4. G

    Need Product Advice for ALS Patient

    My husband is loosing his ability to speak and his motor skills almost prevent him from writing. What kind of electronic device with a keyboard is out there that is small and can be held with one hand and is very simple to understand and use? He won't use a laptop computer so I am looking for...
  5. G

    News Release on Protein Clumps

    Hi Everyone, On the 23rd I saw a news release that scientists found a common cause associated with ALS, Parkinson's, Alzheimer's. It had to do with protein clumps in the brain? Did anyone else see it and if so what did you think? Sounded to me like they now have it pinpointed to the cause and...
  6. G

    PLS and Bladder Urgency

    Thanks everyone. I really had to laugh at the "clean up on Isle 7" it isn't a laughing matter....but it doesn't matter if you laugh. My husband tried Detrol LA and a few other meds but nothing really helps. I bought a new product for baby's, cloth diaper inserts and I sewed them into the front...
  7. G

    PLS and Bladder Urgency

    Well things are certainly getting harder to deal with. My husband has been in a distinct decline since diagnosed 4 1/2 years ago. Recently he has had bladder urgency and when one doesn't move very fast can be a real urgent problem. I have noticed his ankles have been swelling but not sure if it...
  8. G

    PLS vs PBP

    Thanks Caroline, you have a very kind and loving way about yourself, that shows of a beautiful spirit. Yes you have a good memory also. I eliminate all preservatives that my husband eats, no chemicals only natural, organic food and toiletries. I only cook on iron cookware to eliminate any...
  9. G

    PLS vs PBP

    When I was referring to PBP I should have been more specific, I was inquiring concerning Progressive Bulbar Palsy. You know you read and research then read some more and it feels like you are on a treadmill, moving but going no where. My husband goes to the Neuro every three months and the next...
  10. G

    Thanks Caroline for the message, I stopped the forum before because I was getting very depressed...

    Thanks Caroline for the message, I stopped the forum before because I was getting very depressed reading all the messages from other people that were experiencing the same condition and had the same useless help or answers from the medical doctors. Take care my friend sounds as though you are...
  11. G

    PLS vs PBP

    Thank's for taking your time to comment on my post. We are now seeing the neuro every three months. The last time we were there he prescribed a medication that people with parkinsons disease take, it was carbidopa/levodop 25/100, 3x a day for the tightness and weakness in his extremeties but it...
  12. G

    PLS vs PBP

    Hello my name is Gracie, my husband has been diagnosed with PLS 4 1/2 years ago. He has dramatically progressed every year. Within the last 6 months his speech has been effected. He slurrs his speach, sometimes his tone is lower and I have noticed when he talks he seems to run out of breath. A...
  13. G

    Hello Caroline, Yes it has been a while since I have been on the forum. Along with all the...

    Hello Caroline, Yes it has been a while since I have been on the forum. Along with all the progressing illness with my husband, our 42 yr old daughter died July 2009. I had a terrible flu and she helped take care of me, a week later she got the flu and it turned into phenomena and she died in...
  14. G

    Need some answers!

    My husband has been diagnosed with PLS 4 yrs ago. He has been progressing at a pretty rapid rate this year. He has stiffness and weakness in both legs he said walking feels like he has 100 pound weights on each leg, knees kicking back in both legs and clonus in both feet. This year he has...
  15. G

    Pros and cons of Rilutek

    Thank you all so much, I appreciate your honesty and welcomed advice.
Top