Recent content by Grace1218

He doesn't sleep in hospital bed, extremely difficult to get him into bed, can't get comfortable. He sleeps in his recliner. Had Pulmonary Function test done, six months ago, report said moderately severe restrictive lung physiology. FVC reduced to 2.47 liters. He seems to be more "horse"...

My PAL can't sleep in his hospital bed, can't get comfortable, leg muscles are shot, and trunk muscles are almost shot. He is overweight and transferring from recliner to wheelchair to the bed is extremely difficult on both of us. He has been sleeping in his recliner for 1 1/2 years, and is...

My PAL sometimes has bad headaches in morning, also talks out loud in sleep, also claims he heard loud noise, like a radio that wasn't tuned in. (There was no radio on) Is this common?

Even though, my PAL cannot not stand, totally confined to recliner or wheelchair, uses bedside commode, I work full time. My husband , 58 years, feels he does not need any home care. We suggested 2 or 3 times per week for 4 hours, he doesn't think he needs it. I (59 years)do all the...

my husband too, wishes he could sleep in hospital bed, but extremely difficult to transfer him into bed, no trunk control, if he finally gets in and comfortable, has to get out so that he can urinate. He has very little trunk muscles, can't sit up and stay up alone. I have to transfer him in...

Doctor said "time will tell", watch for eating and breathing trouble, have a family discussion, find out if ALS patient wants feeding tube and/or breathing tube. He already said he does not want them. Doctor said no need to see her at this point if condition worsens, call her.I asked the...

my husband is unable to sleep in bed, can only sleep in recliner, anyone else have this problem

No not using bipap. He says he doesn't want any breathing tubes, nor feeding tubes should he start to have difficulty. Pulmonary function test showed moderately severe restrictive lung physiology. Blood test showed Lyme, ANCA panel, GM-a, antibody SSA IgG IgA IgM and immunofixation...

his neurologist said "mostly likely diagnosis is ALS, it is possible that he has PMA" she sent him to Dr. Mitsumoto, Director of Eleanor & Lou Gehrig Center at Columbia University,NYC, who said he is likely to have progressive muscular atrophy, his FVC is 50%

my husband, 58, started 5 years ago with some problems with left foot. then developed a foot drop 2 1/2 yrs ago. Spine surgeon found cyst in the lumbar spine at L2-3 and was surgically removed Jan. 2010, with fusion, mobility improved somewhat. April 2010, had triple bypass surgery, June...