Recent content by goodgreif

Thank you. I have changed my profile.

My husband is interested in taking Lunesin as well but as you said it is very expensive. How are you getting it free?

We have been to a family practice doctor who referred us to a local neurologist. Then we went to an ALS specialist and after that we are now on the 3rd opinion I guess and none have been able to rule it out yet but say it could be in the early stages. All of the Neurologist pretty much said...

Family members are questioning whether ALS is even a possibility because my husband shows no outward signs and everyone keeps saying how good he looks. Any symptoms he brings up they say I have that too, you have always been like that or I don't notice that.

Thank all of you for your advice. I appreciate it very much. It helps to talk to people going through the same thing because no one seems to understand.

That is what I was thinking it meant and is so hard not knowing. I want to hear the doctor say the words no your husband does not have ALS and you can get that off of your mind now. I have tried to get my husband to do some traveling but he does not seem to want to do that. I have kind of...

I am sorry to hear about your friend's husband.

The doctor says he cannot rule out ALS at this time but he also cannot explain my husband's symptoms. So we have been in limbo for quite some time. The conclusion of the EMG report says: This study was abnormal. NCS was normal except for mildly small superficial peroneal SNAP amplitude. EMG...

My husband went for a second opinion. He complained to this doctor that he is cold all the time now. He told my husband this is not an ALS related issue. He also mentioned some pains in his legs and the nurse told my husband that ALS is a pain free disease. The first opinon said early stages...

Some people are not in denial they are actually just in their own world and do not want to inconvenience themselves. They were that way before the illness and they aren't going to let anything change them. They are very selfish people.

You know I never would have believed it but there are people that will actually ignore sick family members when they really need them. I am seeing it first hand myself. My husband's family is the same way. They know he is battling this right now and he would love to see them. I don't know...

My husband's family was never what I would condider close like mine is. They act like they just saw you yesterday when they really only see you at Christmas but to them that is normal. But I thought in a family health crisis they would have felt the need to come see thier son. I know it is...

My husband has been going to the doctor for several months now and he now has a probabable diagnosis from the first neurologists and the ALS Specialist said it was early stges and he is confident he will give him a diagnosis at the next vist. He is goung to another ALS Specialist for second...

He actually ended up later in the day getting me flowers and then we went to dinner so he made up for it. And I did forgive him because he has never forgotten before and we have been together a long time.

My husband has a probable DX and today is my 54th Birthday. With all of this going on he completely forgot my Birthday. He has never done that ever before.