Recent content by gnat

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    Physiotherapy in early stages?

    Hiya, I am still mobile but feet are getting weaker. Diagnosed 6 months ago. I've heard using a physiotherapist regularly can be beneficial but my neurologist seems to think not. Can anyone tell me what benefit a physiotherapist was in the earlier stages, eg maintaining or even regaining a...
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    3 wheel electric tandem trike

    Thanks for that, I appreciate the insights.
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    3 wheel electric tandem trike

    Hi, wondering if anyone has some suggestions for a 3 wheel electric tandem bike. My husband and I biked on manual bikes 30-50km most weekends but now I am too worried I would fall off and won't manage the hills or the distance any more. I've heard about the tandem electric 3 wheeled bikes and...
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Hi from Sydney, Australia. 7 weeks UK and Europe, home just over a week with Covid for the first few days, then flew alone to Australia. Got others to help with my bag which I tried to keep as light as possible. Staying with a friend and attending a conference and presenting a couple of papers...
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    I arrived back home from my 7 week UK and Europe trip at the weekend, positive for covid. Did great to miss it for 7 weeks. Had a brilliant time with friends and family, including our 19 year old daughter joining us for a month. I don't think I deteriorated, apart from noticing a bit of loss of...
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    We visited Heidelberg briefly, was great. Definitely have been having fun and adventure. The trip finishes on Thursday and we have a 24 hour flight home then jet lag, cold, wet weather and short days. But I have managed with MND much better than I hoped on the trip. And thinking we might be over...
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Hallo aus Deutschland (hi from Germany). I've ventured to the other side of the world to New Zealand after diagnosis in March, while my mobility is still good. Managing pretty well, although a few little challenges from time to time including getting menopause in the middle of the trip (of...
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Hugs Joanna, that sounds really tough for you but much better to make the decision now than move in and regret it. I'm currently doing a big 7 week trip while mobile and loving it (diagnosed 1 March 2022). As if MND is not complex enough, I'm also type 1 diabetic on insulin which means I have to...
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    @EricInLA So are you still skiing/boarding in the normal way? I'm wondering if I might just get a chance to ski in August this year (New Zealand) or Japan in January if the borders open. I'm walking but slower and slow up stairs, and progressing slowly so maybe I am mad to even think about this...
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    Adventures at the Grand Canyon, Spring 2022

    Well done with your perseverance!
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Thanks KevinM, autumn/winter in Auckland, New Zealand, is quite mild, we don't get snow, and average high of 14 celsius (57 fahrenheit) and average low of 8 celsium (46 fahrenheit). Decided to go down to 3 days a week of work from May and taking a 7 week UK/Europe holiday from mid May with my...
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    type 1 diabetes (or LADA) and ALS

    Thanks for answering and for your information, I am not on a pump but think this might be a better way to manage it that multiple daily manipulations of pen and needle. Right now I am using fingerprick testing. Currently our funding in NZ is very restrictive for getting a pump and I would not...
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Checking in again this week. We've had stunning weather for most of March and the first part of April, been swimming in the sea a reasonable amount. Nights are getting cooler so the sea might lose some of its appeal soon. Figure it is good for trying to retain some of my hand and arm strength...
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Newbie Natalie here from New Zealand. Been falling a bit since diagnosis on 1 March - 2 x in the sand at a beach out getting bird photos, yesterday in the waves at the beach and once in the park over the dog. Making the most of the end of our summer weather. No harm done but a bit worried about...
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    type 1 diabetes (or LADA) and ALS

    Is there anyone else on this group who has type 1 diabetes or LADA and ALS? I was diagnosed with diabetes 4 years ago and now newly diagnosed with ALS. Not looking forward to the challenges of managing diabetes when my hands lose function. Keen to know how others have got on.
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