Recent content by glimmer

I miss you Allen <3

I Miss You Sharon <3

Allen was a true Compass, his communication through this forum guided my husband and I through the very early stages of diagnosis and we will always be grateful for it. I am so sorry for your loss. He will be dearly missed. Sincerely, Melissa and Rob Irvine aka: glimmer

Praying for you Ted!

Thank you tr and Ted for your interpretations about this :)

So glad you are on here, I am passing your website information along to our team at our ALS Center in New Britain, CT :)

Hi ECpara: Just popping in to say hi. We too are planning trips. We go back for another visit with "The Team" on Monday. I am anticipating that it will be a long day, eager to meet with the dietician and speech therapist. Did you meet with a team? My husband is having more fatigue now...

I love reading hopeful news :) ((HUGS)) Thanks for posting!

Just found this article...more threads of hope to grasp at :smile: ♥ http://www.ncbi.nlm.nih.gov/pubmed/19012065

found this one too... Motor neurone disease drug trial hope | Herald Scotland Feeling full of Hope today :)

What exactly did your Neurologist Tell you is wrong? What exams and tests did they do? If you aren't satisfied with the care you are receiving, go to another group of Neurologists. Hoping you find answers and you don't have ALS.

Just found this link that was posted today on a stem cell breakthrough in the UK. So glad to see more and more news about research for ALS coming about... Stem Cell NewsMotor Neurone Disease Sees Stem Cell Breakthrough |

My husband takes supplements for his cramping, this may have no effect on your fiancé's cramps, but it may be worth looking into, ask his doctor first if it is ok: 800mg Magnesium, 200mg CoQ-10, 250mg Niacinamide and finally the NOW brand Men's Multi Vitamin. Hoping you get answers :)

Thanks deana :) we are blessed &#9829;

Hi Deana: Just sending a hello and some sunshine your way this afternoon :)