Glimmer, What sad news. Until the second opinion I am sure there was "hope". I can not fathom what you and your family are going through. I ask God to wrap Himself around all of you. I pray you find support here, it seems to be a great group. Do you have family support close by? All I know to say is that I am here if you need anything and I am in deep prayer for slow progression and His Peace to be on you all.