Hi Barbie
Thinking of you and your family today. I haven't been on the Forum in months but wanted to see who was still posting. Talking to you was always helpful and I'm so sorry for the tiredness that you feel. Sending a hug through the miles. Loneliness is my enemy now and I try to keep it...
Thank you for sharing what made Brian so special to you and your family. You were both blessed to have each other in this life.
You have now entered a new phase of ALS and I never thought it would be hard too. What could be hard after ALS? It's just a different life than you ever expected...
Thank you so much for the holiday greeting. I was dreading the holidays and we had German visitors with us for nine days. It was a wonderful distraction for me and I enjoyed showing them our city. Glad to know that you are still online. I have been MIA for sometime from the Forum. Happy New...
She is so lucky to have you by her side. Try to sleep when she sleeps because you will continue to need your strength as this beast continues. Thinking of you.
He was such a lucky man to have you in his life and he in yours. So many people are bitter and hateful about their past and the cards that they have been dealt. I'm so glad that the 24th was a special day. Sorry that I just read your message today.
I came home with a "comfort kit" from the VA Hospital when we came home after our 12 day stay in the Palliative Care wing. I administered the drugs and Hospice was only on board with us for 24 hours. They were not with us when he passed 5 months ago today. I thought I was prepared for the end...
Hi Joni
Sorry that you are so low. You can call me Wed if you would like to talk. I'll send you my phone number. I have a Stephens Minister from my church that has been there for me for months now and that has actually been a blessing. I told her that some weeks she is my only visitor to...
So sorry that you are joining our little band of ALS widows and widowers. I am sad every day but I try to remember all the good days that we had before and I know that there are so many good days to come. Four months since he passed but who's counting. Me of course.
We didn't even make the...
CJ. Glad that the new school is working out for your son. I can only imagine how hard it is to think about those father/son moments. Is your husband's friend at all available to be that male "big brother" surrogate in his life? Keep posting. Your comments and support on the forum are so...
I wanted to give you all an update. For over a year, I have been talking with a Stephen's Minister from my church. (A lay person who has been trained to work with church members). Each Stephen Minister meets with his or her care receiver for about an hour a week to provide one-to-one...