Recent content by GalFriday

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    Caregivers with Young Kids

    Oh my goodness.. so many ads on this website! Frustrating!
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    Caregivers with Young Kids

    Thanks for the information. Very much appreciated. My kids know the full story, but have decided they do not want to talk about it or be reminded anymore than they have to. This is perfectly fine and I tell them to just let me know if they have questions. Has worked out well so far. My...
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    sucking through straw/ smoking

    Funny thing about smoking. A PALs that has now passed away was a long time smoker. After his diagnosis, he quit for the most part. But would smoke when he had a hard time coughing up phlegm. Caused him to hack up lots of stuff he couldn't otherwise. I think because it caused such a violent...
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    Party here?

    Been lurking for awhile and thought to try you out. My husband was diagnosed a short time ago, although we both suspected for a year. He is part of an SOD1 family and we have lost and cared for several family members. This time the disease has affected my spouse now and we have young kids...
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    Is there any way to know the progression? :(

    Also note that progression ebbs and flows. You may get rapid progression for a short or longer period of time. Then nothing for a shorter or longer period of time. So, you can't judge even by how your progression has been thus far.
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    Caregivers with Young Kids

    Are you a full time caregiver for someone with ALS and kids in the home? I would like you to share your strategies. The world of ALS is not new to me unfortunately with an aggressive form of familial ALS. We have kids in elementary school and anticipate a rough ride. We have been in contact...
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    New

    I can relate to this a little bit here. Regarding caring for your Mom and then potentially having the disease yourself. Happened to us. We have taken care of a family member from start to end. Bless! And now my spouse has the disease. It's like a bit THANK YOU for taking such great care of...
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    Sod1

    My husband has been diagnosed about 5 months now and is part of an SOD1 family. He is of German and Irish ancestry. His Mom, Aunt and several cousins have passed away from it so far.
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