Recent content by GaborBP

I've had my ferritin tested, it went up to the upper normal region (around 220), when iron dropped to the lower limit. I was wondering if this was perhaps related to an acute infection? Also, I've read that vitamin C and certain other vitamins can mess up your iron and copper metabolism in the...

Hi, Thank you for the friend request and for asking about how I was. The B12 shots are definitely helping with my leg symptoms - two months ago, it was stiff and painful to walk down the stairs in the morning, now I can hike 10 miles in 4 hours. The twitches are still there, and my swallowing...

I've already had two 1000 microgram loading doses of B12 shots, the problem is that they don't seem to help with anything else than giving a temporary relief from some heel and ankle pain

Hi, I'm a realtively old member of the DIHALS forum, so I'll try to be as straightforward as possible to recap the basics: My father passed away from PBP at the of 56. No other family member had MND, and he encountered both head trauma and large amounts of diesel exhaust. I've had widespread...

Hello Voltzor, thank you for your advice, I'll look up this Dr. Andersen. If I recall correctly, he was a prominent member of project MinE

Hi there, Have you tried Lyrica for your twitches? I finally got my neuro to prescribe it, and the twitches are down by about 80% Best, Gabor

Hi there, Have you tried Lyrica for your twitches? I finally got my neuro to prescribe it, and the twitches are down by about 80% Best, Gabor

Hi Laurie, Thank you for sharing your opinion, do you perhaps know of good neuros specializing in MND (and -hopefully in my case - mimics) in Europe, or some resource where I can find a list of such specialists? My main problem with my neuro is not that she's clueless (she's not), I think...

Thank you! So if I understand correctly, a short episode (less than an hour) of slurring is not consistent with how bulbar works?

Hi, I started a discussion here last September, right after having a mildly (but widespread) dirty EMG. I'm sincerely grateful for the support and encouragement I received from the PALS and other people in this forum, they helped a lot to get me trough a very dark phase of my life. I'm checking...

Confusion about bulbar involvement testing Hi, I was wondering about the reason for testing forehead muscles during an EMG. As far as I know, bulb is the archaic name for the medulla. However, the forehead is innervated by the VII. nerve, which originates in the pons. Does anybody know about...

No worries, I'll try some Google magic to find those threads :) You're absolutely right about the excessive worrying part, it's just that I clearly have some kind of an illness - during my last visit, my neuro mentioned the possibility of some mitochondrial disease, mostly because my mother's...

Hi Nikki, Thank you for the reassurance, I have one more question about recruitment: is normal stability with full interference pattern with some amplitude increase during voluntary activity considered "normal" recruitment? What about the polyphasic MUP? I'm sorry if I worded the "I lean toward...

Hi there, Thanks for the friend request and the support! I wouldn't worry too much in your place, you said you had twitches mostly in your legs, which are innervated by L4/L5. The herniation and disc issue pretty much explain it all. The other occasional twitches are most likely caused by your...

Hi, I understand that you're not doctors, and I sincerely appreciate the effort with which you try to answer the posts here while dealing with this terrible disease (as someone who has lost a father to ALS, I'm unfortunately quite familiar with it). I'm posting here because I'm currently in a...