Recent content by Fusia

After a lot of introspection over the last few weeks, I have come to realize there is no more benefit to me in my struggle against ALS - my life these days could really be called breathing rather than living. This is not how I want to live my life. I have decided that I will take my prescribed...

Laura, I am very sorry you're here. But, this is a great place for finding information, getting questions answered, connecting with some wonderful people. I also live alone and have found this site to be a tremendous help. I was diagnosed just over two years ago, with limb onset. I still have a...

I have almost no use of my hands and arms at this point, but my voice is still fairly strong. I use the Voice Control accessibility feature on the Apple iPhone and iPad quite extensively. The one big issue I've run into is that when making outgoing calls, Voice Control stops listening after the...

I've missed several weeks of posting, too. Not much to report, but also, I've had LOTS out of town visitors over the last several months - it's been wonderful spending time with friends, but exhausting at the same time. And, I never seem to get much done when I have visitors staying with me -...

I'm going to say something here that is a little off topic from your questions, but it just bothers me… You mentioned that you had gone to the ER to have some tests run. This is really not a good use of ER resources (especially during Covid), and it is one contributing factor to the high cost of...

The techniques are quite different between a front-wheel drive and mid-wheel drive. On a front wheel drive, when turning a corner, you need to hug the corner on the side you are turning towards before starting the turn so there is room for the back caster wheels to swing around. To make that...

No, not until very late stage of the disease when very little muscle remains.

I'm sorry to welcome you here and very sorry to hear about your dad. I was diagnosed in August 2019, with the first symptom in August 2018. My husband died six weeks after I was diagnosed, so I live alone and depend on some paid caregivers for the assistance I need. At this point, I have very...

Kevin, I guess I will be the first PALS today to bring you some joy…😊 I'm so happy to hear that you still can manage everything without assistance! I'm glad to say the heat has broken here in my area of Montana – we actually had quite a bit of rain last weekend and the temps are now in the low...

I was diagnosed with ALS in August 2019, with symptoms appearing one year prior to that. There was a time sometime after the diagnosis when I noticed I was clenching my jaw and grinding my teeth at night - I suspect it was stress over the situation and the fact that moving in bed was getting...

Greetings from Montana. We continue to have fairly hot temperatures and smoke issues, however today the air seems to be quite clear with temp in the mid 80s. Starting next week, it looks like we will have more reasonable 70s with very cool nighttime temps! I continue to have lots of visitors...

It continues to be unseasonably hot here in Montana this summer, but we are having a few days of mid 80s instead of mid 90s, which feels delightful (although normal temps for this time of year are typically in the mid to high 70s). My brother and sister in law arrived yesterday for a five day...

Welcome, Jim, although I'm very sorry you are now part of this club that no one wants to be in. My symptoms also started in the left hand - I first noticed it in August 2018, was formally diagnosed in August 2019. There are lots of great resources here and very helpful, knowledgeable people.

I have a Permobil F3 - I am about 5'4", weigh about 140. I have a 2015 Toyota Sienna Braunability conversion with a fold down ramp on the passenger side. With the front passenger seat removed, I am able to go forward up the ramp and turn into the passenger area. When the front passenger seat is...

Steve, I'm so enjoying your stories and your photos are amazing! The cackle of sandhill cranes is one of my favorite sounds in the world, so I particularly enjoyed your photo of the sandhills with the chick. You mentioned that you really like ravens… many years ago, my husband and I took a snow...