Recent content by Fusia

  1. Fusia

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    It continues to be unseasonably hot here in Montana this summer, but we are having a few days of mid 80s instead of mid 90s, which feels delightful (although normal temps for this time of year are typically in the mid to high 70s). My brother and sister in law arrived yesterday for a five day...
  2. Fusia

    Just diagnosed

    Welcome, Jim, although I'm very sorry you are now part of this club that no one wants to be in. My symptoms also started in the left hand - I first noticed it in August 2018, was formally diagnosed in August 2019. There are lots of great resources here and very helpful, knowledgeable people.
  3. Fusia

    Wheelchair - permobil f3 - Braunability in a Toyota Sienna

    I have a Permobil F3 - I am about 5'4", weigh about 140. I have a 2015 Toyota Sienna Braunability conversion with a fold down ramp on the passenger side. With the front passenger seat removed, I am able to go forward up the ramp and turn into the passenger area. When the front passenger seat is...
  4. Fusia

    Adventures in Yellowstone: Spring 2021

    Steve, I'm so enjoying your stories and your photos are amazing! The cackle of sandhill cranes is one of my favorite sounds in the world, so I particularly enjoyed your photo of the sandhills with the chick. You mentioned that you really like ravens… many years ago, my husband and I took a snow...
  5. Fusia

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    I'm enjoying hearing of both recent and past adventures in our various National Parks - Yosemite, Yellowstone, Rocky Mountain - all beautiful places (along with all of our other national and state parks). I've had a full three weeks. My two stepdaughters came to visit for four days. I'm not...
  6. Fusia

    Bathroom remodel pics

    Looks great! Very nice job.
  7. Fusia

    Jessie W. Levine (Nona)

    She was obviously a treasure to so many, and will be so missed.
  8. Fusia

    Power Wheel Chair - When to get

    I totally agree with those above. My wheelchair took about three months to get, it was delivered almost one year ago. Until recently, I mainly used it for long hikes and walks outside, but could take shorter walks using the Rollator. Now, I still mostly use the Rollator indoors, but use the PWC...
  9. Fusia

    My Story

    I'm not sure why your son is so dead set against a wheelchair accessible van… I purchased a 2015 Toyota Sienna wheelchair van last fall (I had to stop driving at that point and sold my Honda Pilot, which I absolutely loved). I have not driven the van myself, but all of my caregivers and friends...
  10. Fusia

    sh** is getting real

    Jessie, you have had such an impact on me - your spirit, humor, and sage advice shines through in every one of your posts. You have really helped me to keep a positive outlook. What I've learned about you on these forums is that your time on this earth has not been misspent and you have not had...
  11. Fusia

    ALS at late stage

    Wow, just wow. Your novella is a horrifying and disturbing description of your current existence, and it makes me sad to read it. Here in the US, very few PALS are in facilities, so it was eye-opening to read about the relatively poor level of care that you've experienced. What I'm curious...
  12. Fusia

    Wheelchair mount for van

    If it is the EZ -Lock, you would need a bracket that gets fitted to the bottom of the F3. The bracket has a bolt that sticks down and fits into the receiver on the floor. I will warn you that the bolt on the bottom of the chair may impact the ability of the PWC to go over thresholds and other...
  13. Fusia

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Jessie, you are such a warrior! I'm so sorry you're in such pain, but glad the new hospice is taking better care of you. I'm thinking of you… Much love.
  14. Fusia

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    I had some friends visit from Chicago last week. We were going to take a day trip into Yellowstone National Park, but heard that it's totally jammed with visitors. So, instead we headed west into Idaho and visited a couple of cool things there - Harriman State Park (15,000 acres donated to the...
  15. Fusia

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Eric -I'm envious of your trip to Hawaii! That was one of the places on my travel bucket list, that was canceled due to the pandemic. Cathy - I'm so glad you had a great trip, loved your pictures. It looks like the last time Kristina visited the forums was March 17.
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