Recent content by Fusia

Jessie - congrats on your "triple header" last week! And, I understand how thinking about doing "work" tasks is daunting, everything just seems to take me 10 or 20 times longer than it used to. Congratulations, Kevin, on your upcoming birthday, but I'm sorry to hear that you and a few others...

What is IF?

You could look into renting a hospital bed from a DME, short term, while you were at your friends' house.

Jessie - that is so cool that you got to get out on the slopes! It looked like a glorious day for you, and for those assisting you. Kevin - I read about the expected UAP report, I'm sure it will be a very interesting read! Last week, 7 old friends (I met most of them back in around 1976, when I...

I agree with @jonico that being able to adjust the overhead spray direction is good. I like the idea of a tub filler spout. My handheld sprayer head is a long cylindrical shape, which makes it a little more targeted - easier for the caregivers to use. I think it's helpful to have levers on the...

I am not familiar with him at all. And, there is nothing on his website that would lead me to believe he could do anything at all to help change the course of my ALS progression.

Another Wednesday has rolled around so quickly! Spring weather seems to be pushing itself to the forefront here in Montana - we are to have beautiful sunny weather for the next several days and it's supposed to be 51° on Saturday. Woo hoo! I'm looking forward to getting out more by myself in the...

I'm glad you found this forum, Russ, but sorry that you need to be here. The collective membership here is a wealth of information, knowledge, experience, and ideas, so feel free to post questions and thoughts. It has been a huge help to me, so far, and has become a "virtual family" of sorts for me.

If you are paying out of pocket for the current caregivers from a home care agency, I don't see why you would need to give them up (although that may vary from state to state and local regulations). Hospice would really just be a supplement to them. I know one of my current caregivers had also...

My heart aches for you that you are both dealing with these rapid changes. I know you are a consummate problem solver and a "get 'er done" kind of person - but, I know it gets tedious and frustrating when we have to keep solving slightly different versions of the same problem…

Thanks, everyone, for all of the thoughtful information. It is comforting for me to be armed with good information on how I could retain some control in ensuring my end of life is peaceful and comfortable, if and when I so choose. Also, apologies to @nona for hijacking her original thread, when...

Laurie - could you address the hypothetical situation that Kevin outlined above, when a PALS may not yet have significant air hunger in order to be prescribed morphine, but they consider their quality of life to be unacceptable…