Recent content by FSHolbrook

> Our most brilliant scientists have their hands tied by our government.< I think that statement is totally not correct. I have a family relative(cousin) who is working in stem cell research and she told me that the biggest problem is no one knows how to get them into the human body in a way...

I agree totally with you Max, sorry I did not get together with you in DC, I thought I had your cell number in my phone but, I must have not gotten it in. Rick

I would be calling my neurologist asap. You need to get to the bottom of this as fast as possible. It is really taxing on one to think that they have a serious problem. Rick

I would suggest about any disease the could end you life a second opinion would be a good idea. It may simply entail looking at your previous test results. Rick

I just got an email that said tirasemtiv had been approved and may help with respiratory distress. Rick

<Wouldn't a physician consult with other physicians for his answers instead of going through us? This is extremely weird. I would agree with Max Rick

That is excellent news. I would agree with Celticgirl you will see a great difference. We did. :)

Your eyes water when they get too dry. My OD suggested eye drops and my wife use some kind of ointment at night I would check with an OD. Rick

Hi Kristy, I use AFO(ankle foot orthotics)(sp?) and a walker. Voice banking is very important to me too. The bidet toilet seat is a very useful tool, we have a Brondell S1000. I also use a shower stool which is a big help. We also had a roll in shower installed and wide hallways also 36 inch...

I would think that it would be important to let people know that we are living with ALS not dying from it. I think all the above comments are on the mrk too. Rick

This is very interesting thanks for posting it. Rick

Golly I am really sorry to hear that Max. Hang in there. You are truly an inspiration. rick

I think what happened in my case is that one company who did manufacture the drug sold out to another company and they may not have signed the letter yet or thought that it carried over with the sale. Rick

Thank you for posting the question shawn, I just noticed that I had one foot that was swollen. Rick

So sorry for your loss we will keep you in our prayers. Rick