Hello sorry about you being dignosed with als...I haven't been dignosed but fearful that I will. I'm 44 and happily married with two kids. My husband is supportive but I fear loss of my indepence. It's getting harder to walk and the twitches are constant on my left side. How did you get dignosed? What were your symptoms?
I have been talking to her constantly she is working with stem cell research and from what I know about that it could be a very long time before they find a way to incorporate stem cells into ALS patients. I would like to see research that could find a way to block what ever it is that kills the neurons. My research focused on plant breeding and genetics I wish I had been in medical research working on this nasty disease.
Welcome to our community - sorry you had to find us. Yes -seeking out support groups is very often recommended on this site. How cool to meet your dad! Living old depends on one's perspective - i am saddened by the recent influx of very young members lately. Please ask your cousin to hurry up, will ya?
Greetings to All,
I found this forum several days ago. I was diagnosed with ALS Sept 5 2013. I am very interested that no one has suggested that newly diagnosed folks should seek out ALS support groups. I have found them to be very useful. This is clearly not where I would like to be but, I have it and I am determined to keep living. I might add that I am 73 and have never had anything more serious than a common cold. I discovered my bio. father about a year ago at age 97 now 98 and have visited him. I figured that I would have a long life--wrong.
I would really like to be involved with programs that fund raise to fund more research. My cousin just finished a PhD in Mass. working on the cellular level of ALS, so I know that some research is being done but, there is a long way to go.
Best wishes to all who are affected by this bad boy.