Recent content by Frizzel

First time I've gotten on for quite some time Captain. Oh my I laughed and laughed at this entry. Made my day! Off I go now to share this with my husband. I think of you and pray for you and your family from time to time. You keep hope alive Mt. Pockets! ...I've read what's in our heart...

Hi Liz...Just checking in First of all, I LOVE to hear your kids Liz, are supporting you in a way that you know how valuable you are. I hear you to have people help without you feeling like you're so unable to do any thing for yourself. Even if physically we can't like we use to...Hey, we're...

Good for you! That is great that you didn't give up! Congratulations!

massage Hot baths and massage in the pressure points help. I also heat up a sock with white rice in it in the microwave so I can put it on the areas that hurt. Talk with your doctor to see if there isn't something you can learn to help with the pain for you mom. For me? HEAT! Not too hot...

Thanks for taking the time to let people know the effects of Neurontin Captain. We need to be informed on the pros and cons of keeping ourselves going. You sure did your homework! I won't be taking Neruontin THAT's for sure! Especially after the above post! YIKES! Get on that soap box when...

Singin in the Rain Although I can no longer sing, I like to think I can still mayke a joyful sound. lah laaaaaaaaah! Our daughter gave me a plaque that says, Life isn't about waiting for the storm to pass... It's about learning to dance in the rain! This is the legacy I want to leave for our...

You inspire me Al! I think of you and others often on the forum. Just heading out with my hubs. My diagnosis is definitely PLS. After having almost died from the Hydrogen Sulfide inhilation from our septic vent being stopped up and me breathing it in, I'm back to the progression of PLS...

Cindy...Is the Mike that died the one who was the artist? Frizz

Keep us posted with the answered prayer Thank you for asking us to pray for you. We will...

Discouraged Yes, at times it is discouraging. I've been in the car traveling for the last 5 hours and I'm about ready to go over the edge with leg pain. I'm trying to keep my mind on something other than the pain. The other part of the picture is when i am not in pain I savor every moment...

Pls Welcome Vitaly, I have had PLS for 11 years now. I am always interested in the symptoms of other PLSers. Do you have stiffness? Spacticity...tight muscles? Drop foot? It's the craps to have the diagnosis however it is also the craps to not have one and wonder what could be wrong...

Heat for PLS If I can get heat up to my neck, it helps. Very warm soaks in a bath, shower or hot tub. Then, turn the electric banket on high with a down comforter, get in, turn it back to about a 4-5 I can lower the pain. I'm on 50 mil of Bac a day. I HAVE to do what it takes to get warm...

Functional Short term getting around, I'm slow and steady. Long term, I use a scooter. Depending on whether I'm tired or not, my fine motor skills come and go. I rest when I'm getting tired, even if it's just 20 minutes. Then I get up and try to get moving again. My body when exhausted...

Go HEAT! I sooo feel stronger in the heat. THe cold weather also stiffens me right up and it takes a long time to warm up. We have hot water bottles, heating pads, wool socks and boiled wool slippers and lavendar rice pillows heated up to stay warm. I even sleep with the electric banket on...

The challenges of PLS I was working with a PT for a few weeks and found I was doing most of what he was explaining to me at home. I now have someone who specializes in massage, pressure point, and relaxing/stretching the muscles that are in a constant state of spasm. It works for me. YOu may...