Recent content by Fpm3

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    Advocacy Conference 2016

    Agreed, Nuts. I just registered and looking forward to the conference. Frank.
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    Thick secretions in the back of my throat

    I have used Mucinex and found it to be very effective. I tried it for the same reasons as mentioned - just as good if not better than a script and less side affects. Also, I just heard about pineapple juice at the Polar Plunge for ALS in Manasquan, NJ this weekend and looking forward to trying...
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    Advocacy Conference 2016

    This looks great! I'm very excited to go.
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    Weird feeling when I swallow?

    Hi Carol Sue, I have bulbar involvement and along with speech problems I have challenges with swallowing. I usually only take one gulp at a time and sometimes seem to swallow air as well as liquid. I often burp up the air. To avoid choking I eat and drink slowly and avoid putting too much of...
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    Turning in bed

    My neck is good but legs and right arm are weak and for me sometimes it's easier to sit up and then switch positions as well. I've always slept on my stomach so learning to sleep on my back or side has totally sucked. I also have saliva build-up which usually wakes me so I can.swallow and / or...
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    Numb lip and tongue

    The only numbing that I've felt was when riluzole gets stuck on my tounge and lasts about 20 minutes. I do frequently bite the inside of my mouth which sucks, but certainly the least of my worries.
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    Sleep Troubles

    Thanks. Melatonin sounds simple enough to try, so I'll give it a shot. Will also ask about the finger tip monitor.
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    Sleep Troubles

    thank you both for the feedback. it is very helpful.
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    Sleep Troubles

    Over the past couple months I've had increased difficulty sleeping. I've started listening to Zen radio on pandora which I believe get me to sleep but I wake after 2 hours. I don't think I've slept more than 2 hours at a time for a while now. I wake because I'm uncomfortable and struggle to...
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    Hot hot hot

    Yes, there are time when I feel very hot. It seems to coincide when I have a lot of muscle fasiculations. Not sure if that's what's generating heat.
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    Hi

    Hi Ruthie, I was diagnosed in October 2015 and my speech problems began in July. It began with a lot of hoarseness and slurring. Today, it can be quite challenging to talk especially if I get excited. I think I sound like a walrus when cheering on my son at wrestling matches. So I...
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