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  • My wife was diagnosed with PBP last month. Her symptoms began almost 7 years ago with slurring of speech and progressed to total dysarhtria about 3 years ago. She has some difficulty in swallowing but is still able to eat soft foods. She has had a cough for about 2 years which is worse when she eats. She has some weakness in hands and feet and has developed a finger curl. She has always been afraid of doctors and refuses at this point to take an EMG or swallowing test. She is still mobile but gets very fatigued.

    My question is if anyone else had this slow progression and what happens next.
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