Recent content by flowerpower

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    Cough assist

    It does feel great getting those big deep breaths! :) Tillie, I'm thinking of your friend. The peace of mind I have from just knowing the machine is available and ready to go is huge! I'm hoping your friend gets something that will do the same for them. Thank goodness for advocates like you!
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    Cough assist

    I love cough assist. Twice a day I do three rounds of three breaths, with suctioning in between rounds. I KNOW it has absolutely saved me several times when I was in respiratory distress, and regular suctioning was not doing anything. I have experienced the bad scenario of not being able to...
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    jaw issues

    wow, thanks so much for your replies! I'm still a beginner here on this forum, and this is the first place (6 years in) that I've chatted with other PALS. I feel really grateful to have found this resource with such fantastic people, although I wish we weren't faced with these problems...
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    jaw issues

    Hi friends! :) I have been wondering about jaw issues, specifically underbites. I never really see it mentioned, but my bite has been affected. Has anyone had similar experiences with that, or developed jaw problems since getting sick? I would love to figure out what the deal is, and how to...
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    Hello friends, and also, tube burping?

    hi all! :) As I've said in a couple prior posts, I'm new here, and new to ALS forums and discussions in general. It's been such a revelation to me (and at times made me emotional) to read many of your posts - I can relate. One thing I have never heard of is "tube burping", I saw it in a closed...
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    Eye Tracking for Computer Use

    hi everyone! I'm new to this forum, and really I'm new to having any kind of discussion about Als with people who "get it". I have a tobii I-12. I did just have to swap mine out for the same model (both used) after about a year and a half because the eye tracker wasn't connecting, but up until...
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    New to this!

    hi hannah, I'm new as well : ) this is my first time visiting an ALS forum - I have never really talked to anyone about it. I'm looking forward to making new friends here!
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