Recent content by fizz

It's great news that your EMG was clean! That's the gold standard for ALS/MND, and it would have been dirty before you even saw symptoms. Twitching and dizziness can have many, many causes -anxiety is one of the most common - and atrophy is nearly impossible to diagnose on your own, especially...

I am so, so sorry, Sprawl. Diagnosis is one of those things - at least it was for me - that you think you're ready for until it finally happens. I'm keeping you and your family in my thoughts.

I went to the hospital for a visit today, because as my breathing gets worse, we've had to seriously consider adding a BiPAP to my conglomeration of various medical gear. I was so nervous, but it turns out I didn't really have any reason to be. I've had some bad experiences with doctors in the...

Knowing is better than not knowing, at least in my case, because it took a looong time to be diagnosed and now I actually have access to all the resources I need to get by, you know? And you have indeed helped already, even - it's kind of nice to know that, even if this whole deck of cards is...

I've been following your thread for a while. With regards to your swallowing difficulty - A really common anxiety symptom is exactly what you describe, actually. Difficulty swallowing, phlegm or mucus in the throat, but without any physical cause found is referred to as a globus sensation, and...

I've been lurking for a while and enjoying all the input from everyone, and I figured I should probably say hi before I start replying to posts. :) I'm Fizz, I'm 24, and was diagnosed 2 years ago with a neuromuscular disease that everyone is somewhat confident (finally) is SMA. I've got a cool...