Recent content by FirstMate

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    CALS who have left a job for their PALS

    I stopped working 6 months after diagnosed but used FMLA leave for 12 weeks and was able to keep my benefits until the FMLA leave was exhausted.
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    tirasemtiv

    My PAL participated in the study but unfortunately we don't think he was given the drug. His measurements declined at each visit but he was happy to participate.
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    ALS Diagnosis Confirmed Today

    My husband was diagnosed in September 2013 and we thought about selling our 4 level split that was built in the 60's but the thought of moving was daunting. We decided to stay and make modifications. We moved out in January for about 6 weeks while the work was completed. We moved the master...
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    my son

    So sorry for your loss. Sounds like he had a very fast progression. Praying for peace and comfort for you and your family.
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    He's gone

    So sorry for your loss. It sounded like he was ready to go. Thoughts and prayers go out to you and your family.
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    A mother with ALS.

    My husband was diagnosed in September 2012 and it sounds like he is about the same as your mother. His can't use his legs or arms anymore but he can stil eat and talk. His voice is starting to slur. His Fvc numbers are starting to go down so that means the respiratory muscles are getting weaker...
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    Hydrant Drinking Systems

    Thanks for posting. I'm going to order one.
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    My angel's suffering has ended

    I'm so sorry for your loss.
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    Hi Brad, Yes it is a small world. We were so sad to hear about Chuck and we had planned to...

    Hi Brad, Yes it is a small world. We were so sad to hear about Chuck and we had planned to attend his funeral but the weather was bad that day. My husband, John, has ALS. He was diagnosed a year ago. He can't walk anymore and his left arm is gone and he has minimal usage of his right hand. He...
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    We were good friends with Chuck and Robin. Our boys worked for them and lived in the house...

    We were good friends with Chuck and Robin. Our boys worked for them and lived in the house behind the restaurant. I think you know may also know my niece Kelly. And last week, I talked to Dennis Bradford.
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    I believe we have some mutual friends on the Eastern Shore.

    I believe we have some mutual friends on the Eastern Shore.
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    Officially diagnosed today

    ALS is one of the few diseases that is fast tracked for SSDI. Medicare follows the SSDI approval. You are so young and I'm so sorry that you've been given this diagnosis. I will be praying for you and your family. The first few months are the hardest.
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    is it really possible to have a loved one stay at home?

    My husband has limb onset and he is now 100% dependent on me in less than a year. We have modified our home and just started having a paid caregiver come in twice a week so that I can get out and run errands or just have time for for myself.
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    Goodbye

    You have been a very helpful member of this forum. Why are you leaving?
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    where is everybody?

    I am new member to forum. My husband has ALS and he was diagnosed in September 2012. We have been busy trying to stay one step ahead of this disease and I've learned a lot from all of you. Thank you!
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