Recent content by fifty5coop

Thanks for the motivating words of encouragement, Missy. My condolences on your recent loss of your husband. You re-iterated what I've heard many others say about the great care at the VA. I plan to call his PVA officer on Tuesday. Tim just received the VA letter yesterday and is mailing me...

My brother is rated 100% disability through the VA and is receiving compensation for his service-connected ALS. His diagnosis was done by a neuro at Henry Ford hospital and concurred with by the Detroit VA. April of this year he moved from Michigan to Tucson, AZ to be nearer to me. We got him...

Hi Zen, I've been searching on this site for VA benefit info. My brother is receiving a monthly check from the VA after his diagnosis of ALS. Do you know of a website that would show ALL the benefits the VA provides to veterans with ALS? thanks for any help, hope you are doing ok. Mary

Thanks for asking about my brother, I spent a week with him in Michigan the end of January. He seems content to "stay in the moment" and feels his ALS has "plateaued". His attitude is good, and his bulbar region is the only area affected, plus just a bit of weakness in his left arm. I met his...

Hi Cereus, I just noticed your message, I haven't been on here regularly lately. Good to know there's a fellow Tucsonan on the forum! I'll be heading to Michigan to see my brother next Tuesday, I'm looking forward to seeing him. How is your hubby?

Being a Tucsonian I've had contact with the ALS Assoc. in Phoenix. My contact is Kim Hughes at 602-297-3800 or Matt Hildebrandt at 520-444-0712. They've been helpful with suggestions about ALS and might have info on FTD as well...I know she participates in the clinics held at Banner. Good...

Hello there! I've been sick with a nasty cold - brought on by all the stress I'm sure. My brother sounds as if he's doing ok for now. He did get a copy of the dx from his neuro and mailed it with an application off to the VA. I heard of VA "aid & attendance" benefit which we'll need to...

Hi, so nice to hear from you again. Yes, my bro does have Medicare A&B. Thanks for the VA advice, I'll have to research that route further, I didn't realize they had that much to offer. I am doing better today, tomorrow may be different. We looked at some promising senior-type 2 bdrm apts...

Hi Indigosd, Thanks so much for your advice, you have been a little ray of sunshine to me today. I will definitely see that we get a documented ALS dx when I go to my bro's neuro appt. with him early Jan. Setting him up with their ALS Clinic is on the list also. Is SSDI in addition to...

Thanks for your reply Nancy, and I love your attitude about not focusing on ALS as a terminal disease and instead "living with ALS". I will learn more about his exact diagnosis when I fly back to Michigan early January to attend my brother's neuro appt. He lives alone but is considering...

I'm new to this forum but have been reading your supportive posts. I'm learning my way around the different forums, I posted on the PBP and the introduction forum already today but I'm not sure the best place to ask my questions. My brother was diagnosed in Nov of this year with PBP and he...

I'm new to this forum but have been reading your supportive posts. My brother was diagnosed in Nov of this year with PBP and he said the doctor stated ALS also. Is a PBP diagnosis the same an ALS diagnosis? The neurologist told my brother that his arms, legs, and lungs would eventually be...

Hi, my brother was diagnosed with Pseudo Bulbar Palsy about a month ago, he started slurring his words earlier 2009. He's 65 and lives by himself in Michigan. Just talked to him yesterday on the phone, he is having increasing difficulty speaking and swallowing. I'm flying back there early...