Recent content by Festus

I have learned a lot. I had heard of this, but I don't think I ever had enough depth of understanding. I was reading an article about a player for the New Orleans Saints and it mentioned that medicare or some program may not pay for some of the communication equipment. That is just nuts. The...

I wanted to drop back in and tell you about the test. I called my neurologist back and asked about getting my paperwork forwarded to another specialist and the nurse called me back and said why don't I come in the next day for an EMG. So this morning, I gathered my courage, took some xanax and...

Thank all of you. I will try to live and enjoy life day by day. Although I am for the most part agnostic, I have promised that regardless of my outcome I am going to try to speak to God more going forward in life in hopes that he is there and cares. It has been a hard few days and it seems...

Thanks Affected. Unfortunately as of now I can't get the EMG for several weeks if not months. The content and the scarcity of the neuro's words along with his demeanor put a real scare into me. I am trying to come to terms with whatever this is. There are so many conflicting symptoms with many...

Could I ask one more question to those of you that experienced fasciculations...if you were to enter say a hot bath tub...when you exited were the fasciculations much more bothersome. With me... mine can be active when I go in and then when I get out they feel much more troublesome with...

Thank you Greg for the reply. I did not know that clonus was common.

Thank you Kim. I appreciate you sharing that your doctor actually twitches with hyperreflexia without any big issues. I have become a little more alarmed after reading about clonus. Although no one has ever tested me for clonus I know that I have developed ankle clonus recently. Of course when...

Vince, if I read your post correct, you said that you noticed some weakness near the very beginning of when you first started the twitching...is that correct. (sorry the question mark on my computer is broken) :( I also have a lot of cramping but I have a lifetime history of cramping a lot...

Thank you Nikki. I figured the vaccine was unlikely it just seemed to coincide timing wise. This neurologist did not say definitively it was ALS but he said hyperreflexia is a symptom of ALS or words to that effect. That along with my year long non stop twitching is apparently why he is sending...

Thank you Vince. Do you mind me asking how much time between the initial appearance of the body wide twitching and when you first noticed the weakness in your left hand. Also, when you had the body wide twitches before the weakness in your hand, did you notice that exercising seemed to enhance...

Sorry for the repost but I don't think I can edit the original post to add spaces between paragraphs although i see where comments after can be edited. My apologies.

Okay, I found the "read before posting" link and I see that one of the biggest three signs is hyperreflexia which I have along with fasciculations. That I am guessing is why the neuro is concerned. Apparently I did not have hyperreflexia 6 months ago and now I do. It is definitely why I am...

Since I cannot find an "edit" option here is a repost with paragraphs: First let me say I am grateful for this website and the willingness for those with ALS to help those that are in the process of determining if we have ALS. Your generosity is just awe inspiring to me. If I may briefly say...

Thanks for the response. Could you please tell me where the edit option is...or should I just copy and paste into a reply...

First let me say I am grateful for this website and the willingness for those with ALS to help those that are in the process of determining if we have ALS. Your generosity is just awe inspiring to me. If I may briefly say where I am at. I am a 45 year old male. About 1 year and 6 months ago I...