Recent content by Fasciculation1

spine specialist, then I’ve self referred to a naturopath, integrative physician, ENT, and an infectious disease doc. I’ve literally seen more doctors in the last two years than I have in my prior 40 years of life combined. It can be a grueling process for sure. Have you had your Antinuclear...

The fact your reflexes are intact is a good sign. What I’ve found with docs is they usually want 6 mos between EMGs. Yes, the ping pong game is real, but hopefully on a ping or pong, one of the docs can figure out an alternative. I’ve been pinged all over the place to include two rheumatologist...

Last week I had labs done to see if I hade the HLA-DR gene as well. Those with the gene (24% of the population) can’t purge toxins out of their bodies, especially things like black mold.

A very well respected als researcher said that genetics in als lead the gun and an environment exposure of some sorts pulls the trigger. To me, that always resonated. I also have a very severe mthfr gene mutation, 3/4. Due to the mutation, my body hasn’t been able to purge/methylated toxins like...

my twitching started, I started doing really intense cardio 5) I’m a type A personality and have always worked two jobs, got a PhD, and have really stressed my body doing such.

My top five theories and I think a combination of these things couple have contributed: 1) I grew up on a farm and was exposed to lots of pesticides 2) spent 20 years in law enforcement and was exposed to a tremendous amount of lead and heavy metals test showed I was high in lead 3) about three...

Thanks for your reply. So, your twitching just started in your one leg? Is that where your atrophy started too? How many EMGs did you have to get before they were able to diagnose you?

Ya. You’re welcome. I know it can be a lonely place out there going through all this So, most ppl with MMN show either a conduction block on the NCS, which I didn’t or they have positive anti-GMI antibodies on blood testing. I had neither. It’s still possible to have MMN without either of...

Fortunately, the cramping is the one issues I’ve not had yet. I got a stomach cramp doing yard work about a month ago, which was the first cramp I’ve had in about 20 years, but I think als cramps maybe just come on as a result of doing nothing, but I’m not sure.

I noticed you previously mentioned exercise intolerance and brain fog, those are some classic symptoms of CFS/ME. Have you looked into that by chance?

Basically, my last two neuros stated, we have to wait and see if you get weaker and keep repeating emgs every 6 mos to a year to “see if the disease fully rears its ugly head”. The waiting is the hardest part, especially when you need to wait six months between emgs.

As much as I hate to say it, IMO, it becomes a waiting game. I’ve done thousands of hours of research, looking for alternatives. I’ve done nearly every test. I saw an infectious disease doc out of pocket about 2.5 weeks ago who spend 2.5 hours with me. She ordered 39 different blood tests and...

How are your reflexes? Those are important. Mine were normal in the first few months, then in the lower body turned hypo, and about 9 months ago, in my knees, became absent. A clear sign of LMN involvement.