Very grateful for the info. I started with twitching in my deltoid followed by pain then weakness in that shoulder only noticeable when I lift anything above my head. Neuro diagnosed brachial plexitis after MRI's and EMG's, said the partial loss of use of my shoulder will hopefully return with time. Constant twitching now makes me think that it is ALS when it could be a serious case BFS brought due to severe anxiety.
Hi, I commented on one of your posts a while back. I havnt been on since so didn’t have a chance to reply sorry. I’m 27, female. Have confirmed atrophy on left side, however I have noticed right side. I had first MRI Friday 21st Feb; brain + neck and EMG booked 9th Mar
Hey man I saw you are having swallowing issues as well. For me it's with liquid. Like water feels as if some, not all of it goes up behind my nose. It's not like it drips out but just sits there. Then it feels like it stays there and bothers me.
Something treatable would be so good mate, those letters ALS/MND I hope we never have to hear them, also! I know we aren’t allowed to give out our deatails, but I’m very easy to find on FB with my unique spelling so feel free to find me! For a little more privacy
I've been reading your conversations with Arran and I'm sorry about what you guys are going through. It really sucks. I have started to experience symptoms and I sadly believe it's MND for me. I get the twitches in my tongue as well. Do you guys twitch in the tongue? Arran please answer if you read this too.
I guess i can post on here, been reading your comments and convos. Would like to join in on this journey with all of you, im 21 M. Started twitching bodywide 6 months ago, clean clinicals but no emgs yet. My neuro (NP) is a clown and basically said i could have als without doing any actual tests so i stopped going to her. I dont seem to hve any atrophy or weakness but who knows at this point.