Recent content by Famdamily

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    Very confused and need some advice

    Hello Lola, That is a good question, that I don't know the answer to either. I'm sorry I can't be of more help on that. Other members on here may be able to offer more insight. Keep us updated and please don't hesitate to ask anything. There are very knowledgable folks on the many forums within...
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    Very confused and need some advice

    Lola, Just to add, my neuro suggested I read up on post polio syndrome as the symptoms for my monomelic diagnosis are similar, so yes it can be helpful information apparently. While they aren't the same, the symptoms are very similar in someways, according to my doctor. Take care! :)
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    Very confused and need some advice

    Hello again Lola, Yes absolutely the lower back problems can impact walking. When my back goes I too have found myself on the floor although the last time was a few years ago thankfully. Having the single limb mnd doesn't make us immune to really bad backs that many people have to live with...
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    what do you do with yourself?

    Arens and Chase, I am so very sorry for your loss. So, so sorry. I pray there are blessings ahead for you and yours. (((Hugs)))
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    Very confused and need some advice

    Hello Lola-77, I'm glad to see you are getting help already from some amazing members here. This place can be such a blessing in our quest to understand what is happening to us or someone we love. I am sending prayers for your dad, you and your family. I also have been diagnosed with monomelic...
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    what do you do with yourself?

    Elaine, Bless you. I have so appreciated the words you share with so many on here. Thank you.
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    what do you do with yourself?

    I am so very sorry for this loss in your family. If it's alright, I'd like to share a story... On the wall in my living room hangs a large painting that I bought at a local art show several years ago. It is a simple painting with rich, deep gold and burgundy oil colors that I enjoy. Just off...
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    12/21/12: The real story behind the Mayan Calendar

    Sharing a cartoon I enjoyed today. :-) :wink: And I hope I do this insert a photo in a post thing right... :?
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    Hello Kim and yes thank you for asking. Things are going great for me. I am indeed one of the...

    Hello Kim and yes thank you for asking. Things are going great for me. I am indeed one of the lucky ones. I hope you and your family get to enjoy some good time together during Christmas. Let me know what good movies you have come across in your search! Peace on Earth, M
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    Update: No ALS for Me

    What a blessing! Congratulations! Merry Christmas and may this news bring you peace.
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    Chronic Traumatic Encephalopathy: A Review

    Hello Luke and thank you for bringing this research up for discussion. Interesting findings...and worth consideration.
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    Vote for Ted

    I voted for Ted. I have so appreciated those who have continued to share his journey and news stories in threads on here. Blessings to all. Thanks for sharing the opportunity to give more attention to this research.
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    Hi Kim, thanks for checking in. I'm so glad you have your Dad close by again. I am currently...

    Hi Kim, thanks for checking in. I'm so glad you have your Dad close by again. I am currently watching Master and Commander with my oldest son. He likes this movie a lot so that is a suggestion for one. And of course Dances With Wolves, Rudy, Pride and Prejudice, and I am a huge fan of...
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    Hello Kim - I find it very cool that you "Mommed Up" and took your 15 year old to see J.B. How...

    Hello Kim - I find it very cool that you "Mommed Up" and took your 15 year old to see J.B. How is your hearing after all the screaming? Well done. He is also quite well liked by my 16 year olds; so much so that one of my kids honored him in a lip sync show last year and pulled it off quite...
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    Nice place you have here.

    Thank you so much for sharing all those experiences. I'm so very sorry you have to go through that. It sounds...awful. My heart goes out to you and I'm so glad it has gotten better at times. I will add, that shortly after my earlier whiny post, life happened and reminded me why every moment is...
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