Recent content by Faith27

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    Here again

    Thank you Nikki will do, coping with this for me has been difficult more than my sisters. Thank you again for your advised and May God bless you enormously ❤️
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    Here again

    Hi Nikki He did an extensive physical exam and concluded no weakness so no ALS, he also told me what you said as well the likelihood of this presenting at my age is minimal so he gave me a lot of reassurance and for now to enjoy life and my children. Thank you for checking up on me
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    Here again

    Thank you Nikki!! I only pray to God to give me health to see my children grow and may science advance enough for them to not suffer this horrible disease if I end up having it.
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    Here again

    C9 mutation
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    Here again

    PreFals, I chosed not know my genetic status
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    Here again

    Hi I haven’t been here in a while, to keep story short my grandmother died at 72 with bulbar, 4 of her brothers as well around same age. My mother died at 67 diagnosed at 65 and a cousin of hers diagnosed at 68 died at 70. I’m 39 years old and since she was diagnosed I started twitching...
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    C9orf72

    Thank you Laurie
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    C9orf72

    yes Nikki documented I will be starting the pre-symptomatic FALS research with Dr Benatar. I do not know if I am a carrier yet.
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    C9orf72

    I have not posted in a while, but mom passed on Feb 22 from respiratory failure, she lived 16 months with the disease and what was heartbreaking is that despite us knowing this would happen we did not know it was going to be so soon, from laughing with her on Saturday to seeing her fall sleep on...
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    FALS recently learned

    Thank you all! thank you!!!!
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    FALS recently learned

    I knew of my grandmother dying of ALS but thought that was it (she died at 73). Last year my mother began with a foot drop and she saw a thrillion Drs, dont know how many CT scans and MRI's. Until last week where it was confirmed it is ALS at age 65. Upon review of fam hx turns out 5 of my...
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