Recent content by every90minutes

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    My fight against ALS

    Thanks All. I'm teaching my 7 year old how to surf this week, I haven't surfed myself since my teens, but I have a GoPro and will post all the videos on the FB page.
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    My fight against ALS

    Hi All. I am now chronicling my fight against ALS on Facebook for those who want to follow and connect. I encourage you to share your stories with me as I raise awareness https://www.facebook.com/Every90Minutes Every 90 minutes someone is diagnosed and another dies of ALS. Thanks. Jay
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    Newly diagnosed at 39

    Barbie I disagree about Mayo. They know a lot about EMG, but who on their staff is regarded as a top ALS doctor? If you have the opportunity to travel I think there are better options.
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    Newly diagnosed at 39

    This is exactly where I was 3 months ago. 36 almost the same symptoms except mine started a few months earlier with fatigue. I would suggest going to one of the top Docs like Dr. Appel in Houston, avoid Mayo, they are behind the times with ALS. Good luck but make sure they test for EVERYTHING...
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