I empathize with your situation as I too have muscle twitching and swallowing issues - in addition to chest/back/neck pain, and very loud bilateral tinnitus. It's easy to assume the absolute worst when we're blindly reaching for answers.
Hope you get good news. I have had bfs per my neuromuscular guy for the past four and one half months but have not had an emg. Neuro and physical therapist said no weakness, am strong now I have getting bulbar symptoms, biting my tongue and cheeks, jaw and teeth pain. Is this possible?