Recent content by EricInLA

  1. EricInLA

    Thoughts on ALSFRS-r scores

    I feel like just like MrEDS - my score is holding steady at somewhere between 43 and 45, but my abilities are definitely weakening. Hand and arm are weaker, and there's nothing in my score that captures the pain in my left leg and my favoring of my right leg when standing around. Interesting...
  2. EricInLA

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Nice to meet you Silver Oak. You have (presumably) named yourself after a very fine wine. Sorry you have to be a member of this club (unlike the Silver Oak club) but if you have to be here, this is a good place to be. Lots of helpful information as you've probably seen. I see we have some...
  3. EricInLA

    Thoughts on ALSFRS-r scores

    I am participating in a research study (through EverythingALS) where they do the ALSFRS survey every week and tell you your score. This has me thinking about this scoring model and I'm curious on opinions as to whether this thing is really useful, and how to tell, for instance, whether my...
  4. EricInLA

    I am now a PALS

    Dan, I too am sorry that you've received this diagnosis. I received the same diagnosis about 21 months ago, at the age of 49 (and coincidentally am also the father of 3 amazing kids). A couple of months after my diagnosis, the Coronavirus descended on us all and everyone was musing about how...
  5. EricInLA

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Hi friends - No summer rain showers here in SoCal. Just drought, And wildfires. Fortunately no fires in Los Angeles, but it's not looking good in parts North. I love the pictures from Coeur d'Alene. That's always seemed like an idyllic summer destination. Maybe one day. Though I'm not...
  6. EricInLA

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Just so we wont feel left out of all this natural disaster talk, Mother Nature threw us a bone today - a 6.0 magnitude earthquake in Central California, just North of Yosemite. I was in Yosemite 2 weeks ago! Good timing, Eric. In other news, I just had my new BBQ delivered! I'm very excited...
  7. EricInLA

    For anyone that follows Major League Baseball

    Those are fantastic stories. I had forgotten (or didn't know) that Ted Williams hit .388 at the age of 40. That's ridiculous. Growing up a Dodger fan in the late 70s, it seemed the Dodgers were always playing the Yankees in the World Series. Naturally, this led to my dislike of the Yankees...
  8. EricInLA

    For anyone that follows Major League Baseball

    Well said, Kevin. I am a Dodgers fan so I don't watch much of the Angels or Ohtani, but I agree this guy is a unique player in our lifetime. We haven't seen anything like it, other than grainy footage of the Babe (who played in a segregated era and therefore is not as impressive, IMHO)...
  9. EricInLA

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Hi friends - Had a nice trip to Yosemite with family and friends. Still able to climb the Mist Trail to Vernal Falls - that lifted my spirits. I told my family I didn't need anything for Fathers Day, other than to hike with my boys in Yosemite. That's what I got, and it was so good. It was...
  10. EricInLA

    Jessie W. Levine (Nona)

    I'm not sure either, but here it is. Jessie W. Levine Obituary (2021) Concord Monitor I miss her already.
  11. EricInLA

    sh** is getting real

    Hard to find words, Jessie, so I will say that I'm fist-bumping you right back. In my relatively short journey, I have been drawn to you. I love your raw sincerity, your courage, your humor, and your willingness to give. Those qualities will endure in those of us who've become your friends...
  12. EricInLA

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Jessie, I don't know which responsive emoji to use in response to your post. A whole range of emotions surface, and none of the offered ones captures it. So I'll just say that I'm thinking about you, and hoping that back/neck pain subsides. Your beautiful smile inspires me. I root for your...
  13. EricInLA

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Hi friends - I had my 4-month neuro appointment last week. No major developments. Still progressing slowly. I know my arm has gotten weaker, but the doctors weren't too interested in that. This is a big week - my oldest son turns 21 today, so we're taking him out to a local fave...
  14. EricInLA

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Happy "Lou Gehrig's Day" everyone! I think it's cool that our 'rare' disease is getting some attention on a big, nationwide platform. I'm using the occasion as an excuse to drink beer and watch the Dodger game with friends at a sports bar in Redondo Beach, which we can actually do now! (thank...
  15. EricInLA

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    I've been trying to focus on the positive lately, so I will say I that I'm happy for Fusia and Krismn that you are looking forward to enjoyable visits by friends and family. Sometimes the anticipation is just as fun as the actual event. We just booked a family trip to Hawaii - as some of you...
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