Recent content by EricInLA

  1. EricInLA

    Must-See Documentary

    Thanks for putting out the word. It's been on our list to watch, so now I'll move it to the top of the list.
  2. EricInLA

    Governor Disastrous strikes again

    I can't wait to hear Kim's thought about this. :LOL: Kim? Where are you? It's absolutely insane. Full crowd at the Super Bowl??? I can only think he got the call from Daddy who told him he needs to do this. The very sad reality is that there IS a smart way to open up during a pandemic so...
  3. EricInLA

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Ha, that makes me laugh. As Homer Simpson would say. . . "beeeeeeeeer". Plumbing leaks are the worst - hope they fix it quickly, Kevin. Chicken salad sounds pretty good. Nothing much to report. The air is better in Los Angeles - woo hoo! A little stumble by my Lakers last night, but I...
  4. EricInLA

    Trying to Stem the Tide

    Is this the guy who wrote an article about his plan to live comfortably for a long time with ALS through utilization of every piece of technology imaginable, eventually just hooked up to a machine to run his bodily functions? Well, either way, I think we all know that this is not a disease you...
  5. EricInLA

    Aluminum Wheelchair Ramp 30’ - FREE to PALS

    Thank you for this offer. Did you post pictures? I can't see them.
  6. EricInLA

    IPL344 Molecular Therapy

    When I was first diagnosed, I read up on all the advances going in Israel, and for a minute thought about just going there for a trial. (I have lots of family there that could put me up and support me) But realistically that doesn't work for my family situation. I go through the same analysis...
  7. EricInLA

    Wishes for a Sweet New Year

    Tonight begins the Jewish New Year, so for all those who celebrate, I wish you a Shana Tova! And for those who don't, I send you sweet wishes too. It’s been a tough year for many of us, so may the coming year be a better one for everyone. May we all experience plateaus in our physical...
  8. EricInLA

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Hi all. I've been pretty stable - shoulder pain subsided, but on the other side of the ledger I'm noticing more leg pain in the evening after moving around all day. The thing that's been annoying me most is more mental than physical -- noticing the skin on my right arm shrivel as the muscles...
  9. EricInLA

    Just finished second opinion appointment

    Ramble on! So much of your rambling is familiar to me. I was also sorta dismissed on these pages when I first posted. I actually think this forum needs to do a better job in that area (but that's a separate topic). Isn't it crazy that once you start getting answers -- even ones we don't want...
  10. EricInLA

    Still no words

    I empathize with you, and I send you good thoughts to make it through. Your words resonate with me. I lost my father a couple years ago -- he was, other than my wife, the closest person in the world to me. We were basketball mates, business partners, best friends. Like your husband, he was...
  11. EricInLA

    Make a sentence game

    NOODLE None of Odysseus' dilemmas look easy. ODYSSEUS
  12. EricInLA

    Just finished second opinion appointment

    I'm sorry to hear it. I know that sick feeling in your stomach when they start talking and you sense it's going the wrong way. At my second opinion appointment a few months ago at UCLA, the doctor did her clinical exam, took a deep breath, and started talking with sentences that all started...
  13. EricInLA

    VA-related rants

    The only person who should be apologizing to vets is their commander-in-chief. Frankly, I don't see how any military family stayed with this guy after he said John McCain wasn't a hero because he was caught. John McCain was the paragon of heroism. On the other hand, Mr. Shin Splints is a...
  14. EricInLA

    Can we donate blood?

    Well people, I had to go to the blood donation site -- the gym at our synagogue -- just to have them REJECT me! :mad: Disappointing. Apparently ALS is on "permanent deferral" status for blood donation. (see chart). The nurse didn't have a good explanation for me, but upon further research it...
  15. EricInLA

    Can we donate blood?

    That’s good advice Kim. I will do that.
  16. EricInLA

    Can we donate blood?

    It appears as if I'm eligible! I read the list of disqualifying conditions/medications and none of them pertain to MND. Our disease is so miserable that it doesn't even make the disqualifying list :LOL::rolleyes: So, I'm signed up for Sunday. Last time I did years ago, I passed out. It was...
  17. EricInLA

    Amylyx Educational Summit in Advance of Releasing Data

    I watched the segment on the NBC Nightly News - so awesome to see Kristina and family on there. You all looked great. I wish the report and been longer with more details, but I understand that's not a really a space for that. Interesting how they couched it as an "ice bucket" story. I'm...
  18. EricInLA

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Returning that love, Jessie and Kevin and others. I am also enjoying the NBA bubble playoffs (Go Lakers) - the last two night's late games were really exciting. I have been suffering from shoulder pain the last couple of days. I overused my weak right arm on Monday, and it let me know by...
  19. EricInLA

    New Wheelchair Joins the Family

    Dealing with insurance people is not for the weak of heart. But, I'm glad you were able to convince them to replace the wheelchair. That's the big accomplishment here. Nice going.
  20. EricInLA

    National Dog Day

    Dogs are just the best. I am a labrador lover. Currently we have Daisy (whose picture you can see on the left). She is a golden mixed with something else (?). I would love to get another dog, preferably a labrador. I could probably convince my wife and kids to go along with it. Maybe. . .
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