Recent content by Epsteinroberta

Can't control my toothbrush. What now?

A friend just sent me a link suggesting coconut oil as an aid for ALS. Anyone familiar with this?

I thought I read somewhere than an ankle brace could be used to add support to walk. Anyone know if this is so and what kind?

I've never had acid reflux and now find a slight case of it each night when I lie down even though I haven't eaten in hours. Is thie related to the disease?

Before being diagnosed with ALS, I had a nerve biopsy which suggested I have/had CIDP. I have been receiving IVIG which does give me a boost. My doc said he has never heard of anyone having both conditions. Have you?

I'm investigating ways to get up the stairs to the second floor of my house-which I can't sell. I'm having more and more difficulty. Anything specific I should look for or are they all pretty much the same?

My walking is getting weaker. Indoors, I use a walker and/or a rollator. Outside, I have a transport chair. My walking is now frequently shuffling and at times, my right leg isn't even doing that. I wait and wait and then it eventually will shuffle. When I need a wheelchair, am I still able to...

When I tap on the heaviness thread, I don't get anything. What am I doing wrong?

Were you told this by a doctor?

I know the verdict is still out on whether physical therapy is helpful or not. I've just started and am sticking to range of motion and resistance. Any thoughts or personal experiences?

Yes it's the drop foot. Where do I get an AFO and can I wear it with shoes?

What is rom?

When my toes curl, that's when I'm likely to fall. They'd been ok for a while but are starting again. Any suggestions?

I don't know about slings. Please tell me. I was wondering what happens when I'm in a wheelchair. Can I still use the toilet?

McDonalds is the only one I haven't tried! Think Burger King would be as effective?